HomeAbout NHGRIOrganizational StructureAbout the Office of the DirectorOffice of EthicsBarbara Fuller, J.D. Fuller Publications

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Barbara Fuller, J.D.

Assistant Director for Ethics, National Human Genome Research Institute
Deputy Ethics Counselor, Office of Ethics

Selected Publications

Gollust SE, Apse K, Fuller BP, Miller PS, Biesecker BB. Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions. Am J Public Health, 95(1):35-41. 2005. [PubMed]

Apse KA, Biesecker BB, Giardiello FM, Fuller BP, Bernhardt BA. Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients. Genet Med, (6):510-6. 2004. [PubMed]

Fuller BP, Jeffries J. From DNA to data privacy. J AHIMA, 72(3):46-50. 2001. [PubMed]

Fuller BP, Kahn MJ, Barr PA, Biesecker L, Crowley E, Garber J, Mansoura MK, Murphy P, Murray J, Phillips J, Rothenberg K, Rothstein M, Stopfer J, Swergold G, Weber B, Collins FK, Hudson KL. Privacy in genetics research. Science, 285(5432):1359-61. 1999. [Full Text]

Last Reviewed: August 17, 2009