2014 GCTP Alumni Research Symposium
August 1, 2014
On August 1, 2014, the National Human Genome Research Institute (NHGRI) sponsored the 2014 Genetic Counseling Training Program (GCTP) Alumni Research Symposium - held in Building 31, Conference Room 6C6 on the NIH's main campus in Bethesda, Md.
The goals of the symposium were to:
- To highlight genetic counseling practice-related research.
- To discuss design and implementation of studies on integration of new technologies.
- To advance the role of genetic counseling-led research related to clinical practice.
- To recognize the accomplishments of our alumni.
|1||Welcome and Introductions||Barbara Biesecker, Ph.D.
Lori Erby, Ph.D.
Johns Hopkins Bloomberg School of Public Health
|2||Participant Introductions||All Participants|
|3||Opening Remarks||Barbara Biesecker, Ph.D.
|4||Parental decision-making for children enrolled in exome sequencing research||Julie Sapp, Sc.M, C.G.C.
Danielle Dong, Sc.M., C.G.C.
|5||The BabySeq Project: Genome Sequencing for Childhood Risk and Newborn Illness||Sarah Kalia, Sc.M., C.G.C.
Brigham and Women's Hospital
Participant Experiences Receiving Genome Sequencing Results
|Katie Lewis, Sc.M.
|7||Understanding Baseline Engagement with Genome Sequencing in the ClinSeq® Genomic Sequencing Study||Gillian Hooker, Ph.D., Sc.M.
|8||Exploring parental views about the role of parents in research on their own child's condition||Leila Jamal, Sc.M., C.G.C.
Johns Hopkins Berman Institute of Bioethics
|9||Discussion of presentations collectively||All Participants|
|10||Research Design and Implementation Working Groups||All Participants|
|11||The Role of Uncertainty in Coping Efficacy: The Experience of Parents of Children with Undiagnosed Medical Conditions||Ellen McNamara, Sc.M.
|12||Genetic Counseling in a High Volume Radiology Clinic||Jessica Salamone, Sc.M., Ph.D.
Elizabeth Wende Breast Care
|13||Adaptation to living with a BRCA1/2 mutation in carriers and their partners||Rachel Shapira, Sc.M.
St. Joseph's Hospital of Orange
|14||Collective Discussion of Presentations||All Participants|
|15||Success with R21/PCORI Grants||Holly Peay, Ph.D.
Parent Project for Muscular Dystrophy
Last Updated: August 15, 2014