We are eager to hear suggestions from the families who are considering coming to the conference on the topics that they are most interested in having covered. We will make every effort to tailor the sessions to meet these needs.

For further information or with comments, please contact:

Cherye Milburn, R.N.
Phone: 301-435-6685
FAX: 301-480-9026
E-mail: cmilburn@nhgri.nih.gov