Welcome to the NHGRI Policy and Legislation Database

This database contains Federal and State laws/statutes; Federal legislative materials; and Federal administrative and executive materials, including regulations, institutional policies, and executive orders. The database currently focuses on the following subject areas: privacy of genetic information/confidentiality; informed consent; insurance and employment discrimination; genetic testing and counseling; and commercialization and patenting.

How to Search the Database:

• With the Search Boxes: You can pick as many terms in each search box as you like. Adding other search criteria, such as "Content Type," "Topic," "Source," and "Keyword" will refine your search (search criteria are connected with a Boolean AND).

• By Keyword: The Keyword search option looks for the entered word(s) in the title field. Entering a single word in the box is usually sufficient.

• By Using the U.S. State Map:     

Content Type
Federal administrative and executive materials Federal and State statutes/laws Federal legislative materials Foreign statutes/laws Selected International Materials

Topic
Commercialization and Patenting Employment/Insurance Discrimination Genetic Testing and Counseling Informed Consent Privacy of Genetic Information Newborn Screening Cloning Stem Cell Research Nonmedical Applications (Adoption) Databanks

Source
Australia Department of Commerce/United States Patent and Trademark Office Department of Health and Human Services Department of Health, Education, and Welfare Equal Employment Opportunity Commission European Union General Accounting Office HHS/Secretary's Advisory Committee on Genetics, Health and Society Iceland International National Institutes of Health National Institutes of Health/National Human Genome Research Institute President's Council on Bioethics U.S. Congress U.S. House of Representatives U.S. President U.S. Senate United Kingdom All States Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming

Keyword (The Keyword search option looks for the entered word(s) in the title field. Entering a single word in the box is usually sufficient.)

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