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| State | Citation/Title  (link to state's page) |
Topic | Summary | ||
|---|---|---|---|---|---|
| California | 2012 State Bills:
|
Privacy, Research |
This bill creates the Genetic Information Privacy Act. The bill prohibits any person from obtaining, analyzing, or disclosing genetic information without the written authorization of the individual to whom the information pertains and requires a separate written authorization for each separate disclosure of an individual's genetic information, with some exceptions such as for law enforcement. The bill permits disaggregated and anonymized data to be used in the manner specified that was collected before the bill's enactment without the authorization described above. The bill also permits the use of disaggregated and anonymized data, as specified, if written authorization is obtained and the data is used for a purpose authorized by the individual to whom the information pertains. Measure failed. |
Last Reviewed: December 27, 2012
