Bowles Biesecker Publications

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


Barbara Bowles Biesecker, Ph.D.

Associate Investigator, Social and Behavioral Research Branch
Head, Genetic Services Research Unit
Director, JHU/NHGRI Genetic Counseling Training Program

Selected Publications

Gray S, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KF, Joffe S, Rini C, Veenstra D, McGuire AL and Members CSER Consortium Outcomes and Measures Working Group. Social and Behavioral Research in Genomic Sequencing- Approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group. Genet Med, doi: 10.1038/gim.2014.26. 2014. [PubMed]

Peay HL, Tibben A, Fisher T, Brenna E, Biesecker BB. Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy. Clin Trials, 11(1):77-85. 2014. [PubMed]

Wright MF, Lewis KL, Fisher TC, Hooker GW, Emanuel TE, Biesecker LG, Biesecker BB. Preferences for results delivery from exome sequencing/genome sequencing. Genet Med, 16(6):442-7. 2013. [PubMed]

Peay HL, Rosenstein DL, Biesecker BB. Parenting with bipolar disorder: coping with risk of mood disorders to children. Soc Sci Med, 104:194-200. 2014. [PubMed]

Jamal L, Sapp J, Lewis K, Yanes T, Facio F, Biesecker L. Biesecker B. Research participants' attitudes toward the confidentiality of genomic sequence information. Eur J Hum Genet,  doi: 10.1038/ejhg.2013.276. 2013. [PubMed]
 
Sapp J, Dong D, Stark C, Ivey L, Hooker G, Biesecker L, Biesecker B. Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children. Clin Genet, doi: 10.1111/cge.12254. 2013. [PubMed]
 
Biesecker BB, Erby LH, Woolford S, Adcock JY, Cohen JS, Lamb A, Lewis KV, Truitt M, Turriff A, Reeve BB. Development and validation of the Psychological Adaptation Scale (PAS): Use in six studies of adaptation to a health condition or risk. Patient Educ Couns, 93(2):248-54. 2013. [PubMed]

Facio FM, Eidem H, Fisher T, Brooks S, Linn A, Kaphingst KA, Biesecker LG, Biesecker BB. Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study. Eur J Hum Genet, 21(3):261-5. 2013. [PubMed]

Shiloh S, Wade CH, Roberts JS, Alford SH, Biesecker BB. Associations between risk perceptions and worry about common diseases: a between- and within-subjects examination. Psychol Health, 28(4):434-49. 2013. [PubMed]

Shiloh S, Wade CH, Roberts JS, Hensley Alford S, Biesecker BB. On averages and peaks: how do people integrate attitudes about multiple diseases to reach a decision about multiplex genetic testing?  Med Decis Making, 33(1):71-7. 2013. [PubMed]

McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Point-counterpoint. Ethics and genomic incidental findings. Science, 340(6136):1047-8. 2013. [PubMed]

Biesecker BB, Schwartz MD, Marteau TM. Enhancing informed choice to undergo health screening: a systematic review. Am J Health Behav, 37(3):351-9. 2013. [PubMed]

Truitt M, Biesecker B, Capone G, Bailey T, Erby L. The role of hope in adaptation to uncertainty: the experience of caregivers of children with Down syndrome. Patient Educ Couns, 87(2):233-8. 2012. [PubMed]

Wade CH, Shiloh S, Roberts JS, Hensley Alford S, Marteau TM, Biesecker BB. Preferences among diseases on a genetic susceptibility test for common health conditions: an ancillary study of the multiplex initiative. Public Health Genomics, 15(6):322-6. 2012. [PubMed]

Madeo AC, O'Brien KE, Bernhardt BA, Biesecker BB. Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions. Am J Med Genet A, 158A(8):1877-84. 2012. [PubMed]

Wade CH, Shiloh S, Woolford SW, Roberts JS, Alford SH, Marteau TM, Biesecker BB. Modelling decisions to undergo genetic testing for susceptibility to common health conditions: an ancillary study of the Multiplex Initiative. Psychol Health, 27(4):430-44. 2012. [PubMed]

Facio FM, Brooks S, Loewenstein J, Green S, Biesecker LG, Biesecker BB. Motivators for participation in a whole-genome sequencing study: implications for translational genomics research. Eur J Hum Genet, 19(12):1213-7. 2011. [PubMed]

Turriff A, Levy HP, Biesecker B. Prevalence and psychosocial correlates of depressive symptoms among adolescents and adults with Klinefelter syndrome. Genet Med, 13(11):966-72. 2011. [PubMed]

Sutton, E., Young, J., McInerney-Leo, A., Bondy, C., Gollust, S., Biesecker, B. Truth Telling and Turner Syndrome: The Impact of Diagnostic Disclosure. J Pediatr, 148(1):102-107. 2006. [PubMed]

Gooding, H., Organista, K., Burak, J., Biesecker, B. Genetic Susceptibility Testing from a Stress and Coping Perspective. Soc Sci Med, 62(8):1880-1890. 2006. [PubMed]
Gollust, S., Apse, K., Fuller, B., Miller, P.S., Biesecker, B.B. Community involvement in policy-making for genetic tests: assessing the interests and experiences of affected individuals. Am J Public Health, (1):35-41. 2005. [PubMed]

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Last Updated: July 10, 2014