2001 Release: Decade of ELSI Research Conference

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


"A Decade of ELSI Research" Conference

January 2001

BETHESDA, Md. - The Ethical, Legal and Social Implications (ELSI) Research Programs of the National Human Genome Research Institute (NHGRI) and the U.S. Department of Energy (DOE) sponsored a conference Natcher Conference Center, National Institutes of Health, January 16-18, 2001 to reflect on the past, present and future of ELSI research to consider its impact on genetic research, health and public policy.

The three-day conference featured presentations by leading researchers on topics such as genetic privacy and discrimination; the integration of genetic technologies and information into healthcare; genetic enhancement; behavioral genetics; and genetic variation, race and culture. On January 18, Dr. Francis Collins, director of the NHGRI, presented his vision of genetics, ethics and policy in the 21st Century. The conference concluded with a town meeting to discuss issues brought up during the conference and to suggest future topics for ELSI research.

The ELSI Research Program is an integral part of the U.S. Human Genome Project (HGP). The program's mission is to identify, analyze and address the ethical, legal and social implications of the HGP at the same time that the basic scientific issues are being studied. The ELSI research program funds and manages research grants and education projects at institutions throughout the United States and supports workshops, research consortia, and policy conferences related to these projects.

ELSI Research Programs

Contact:

Geoff Spencer
NHGRI
Phone: (301) 402-0911

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Last Reviewed: September 2006