ELSI Research: New Goals for the Next 5 Years

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


Ethical, Legal and Social Implications (ELSI) Research

Goals and Related Research Questions and Education Activities for the Next Five Years of the U.S. Human Genome Project

This document was prepared by the ELSI Research Planning and Evaluation Group (ERPEG) to illustrate more fully the breadth and complexity of the ELSI goals. Each goal statement is accompanied by examples of possible research questions and education activities. These examples are meant only to give a flavor of the possible issues to be addressed, and are not, in any sense, exhaustive or comprehensive.

1. Examine the issues surrounding the completion of the human DNA sequence and the study of human genetic variation.

Examples of Research Questions and Education Activities:

2. Examine issues raised by the integration of genetic technologies and information into health care and public health activities.

Examples of Research Questions and Education Activities:

3. Examine issues raised by the integration of knowledge about genomics and gene- environment interactions into non-clinical settings.

Examples of Research Questions and Education Activities:

4. Explore ways in which new genetic knowledge may interact with a variety of philosophical, theological, and ethical perspectives.

Examples of Research Questions and Education Activities:

5. Explore how socioeconomic factors, gender, and concepts of race and ethnicity influence the use and interpretation of genetic information, the utilization of genetic services and the development of policy.

Examples of Research Questions and Education Activities:

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Last Reviewed: February 27, 2012