Policy Recommendations for Genetic Discrimination in Insurance or Employment Discrmination

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services

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Policy Recommendations for Genetic Discrmination in Insurance or Employment

In the mid 1990s, the National Institutes of Health-Department of Energy (NIH-DOE) Ethical, Legal and Social Implications (ELSI) Working Group and the National Action Plan on Breast Cancer (NAPBC) cosponsored workshops on genetic discrimination in health insurance and the workplace.

The findings and recommendations of the workshops were published in Science. They have served as the foundation for policy-making in the Executive branch and for legislation (including legislation enacted into law) at both the state and federal level.

Insurance Discrimination


Genetic Discrimination and Health Insurance Workshop Report

Hudson, Kathy, et al, Genetic Discrimination and Health Insurance: An Urgent Need for Reform. Science, Vol. 270, 391-93. 1995 [PubMed]

Employment Discrimination


Rothenberg, Karen, et al, Genetic Information and the Workplace: Legislative Approaches and Policy Challenges. Science, 275:1755-57. 1997. [PubMed]

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Last Reviewed: March 15, 2012