Agenda: A Community Genetics Forum

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


A Community Forum on Genetics: DNA, Health, and Social Justice

Hosted by the University of Washington
Sponsored by the National Human Genome Research Institute

William H. Gates Hall, University of Washington

Saturday, May 21, 2005
9:00 a.m. - 3:00 p.m.

Agenda



Time Topic Speaker
9:00 - 9:30 a.m. Welcome Dr. Wylie Burke
University of Washington
9:30 - 11:00 a.m. Keynote
Q&A Session
Dr. Francis S. Collins
National Human Genome Research Institute
11:00 a.m. - 12:15 p.m. Concurrent Breakout Sessions I Forum Participants
12:15 - 1:15 p.m. Lunch

Poster Session: Biotech Expo and other student projects and displays from community and agency partners
1:15 - 2:30 p.m. Concurrent Breakout Sessions II Forum Participants
2:30 - 3:00 p.m. De-brief, Evaluations Forum Participants

Session Topics

Genetics 101
This session will provide participants with a background of key concepts in genetics, review applications of genetics in society, and introduce the concept of ethical, legal, and social implications (ELSI). This session will be presented in lecture format with time for question and answer. (Note that all other breakout sessions will include a brief introduction to the key scientific, ethical, legal, and social concepts to support active discussion by all session participants.)
Using Genetics in Healthcare
This session will examine how genetics is applied in healthcare such as tissue matching for organ transplants. It will highlight who has access to these procedures and how everyone can learn to navigate the system for genetic services.
Cultural Competency and Family History

This session will look at the cultural meanings of family history and implications of using family history in healthcare. It will be an opportunity to discuss cultural competency at the provider and institutional level, and how to ensure that genetics policies are culturally competent.

Control of DNA Sample - Genetics Research and Community-Campus Collaborations

This session will explore the issues that arise from the use of DNA samples in research including who has control of DNA samples; ensuring privacy for participants, families, and communities; and the role of community institutional review boards.

Testing for Ancestry: Race and Genetics

This session is an opportunity to discuss the use of genetic tests to identify racial ancestry. It will be an opportunity to consider the pros and cons, and to consider the implications of these tests for multi-racial/multi-ethnic people.

Racial Profiling and DNA Evidence

This session explains how DNA is used in the legal system. In particular, the session will focus on the influence of genetics on racial profiling in the criminal justice system, and the role of DNA evidence in the legal system and its implications for racial minorities.

Behavior and Genetics
This session will focus on the suggestion that some behaviors may have underlying genetic reasons. It will offer a chance to discuss the state of the science and the implications and assumptions of these theories.
Implications of Genetics for Environmental Justice
This session considers the role of genetic information, testing, and knowledge in the environmental justice movement. It will provide an opportunity to strategically consider where and when genetics is helpful or harmful to an environmental justice agenda.
Careers in Genetics

This session is designed for high-school-aged participants and will provide an overview of opportunities for careers and research in genetics, translational/clinical research, and research into the ethical, legal, and social implications of genetics. Students will have the opportunity to hear directly from NHGRI staff, UW students and faculty.

William H. Gates Hall is located in the University of Washington School of Law near the northwest corner of the University of Washington Seattle campus, near the intersection of 15th Avenue NE and NE 43rd Street.


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Last Reviewed: March 25, 2011