Making Every Voice Count was announced in September 2006 to support research that will obtain wide societal input to inform the design and implementation of a possible large U.S.-based longitudinal cohort study of the role of genes and environment in health and disease. The project has three specific aims: 1) Develop and evaluate informational materials describing the goals and design considerations of a large cohort study; 2) Assess public attitudes about a proposed cohort study at the individual level; and 3) Engage citizens and community leaders to assess attitudes and pilot test methods of initiating community-based dialogue.
Making Every Voice Count is being conducted by the Genetics & Public Policy Center of Johns Hopkins University [dnapolicy.org] with partial support from the Ethical, Legal and Social Implications Research Program at the National Human Genome Research Institute.
Genetics & Public Policy Center: Making Every Voice Count [dnapolicy.org]
Genetics & Public Policy Center: Public Consultation Project Description [dnapolicy.org]
Joan Scott, Johns Hopkins University [dnapolicy.org]
Teri Manolio, NHGRI
Jean McEwen, NHGRI
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Last Reviewed: November 1, 2010