Rothenberg Publications

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services

Karen H. Rothenberg, J.D., M.P.A.

Senior Advisor to the NHGRI Director on Genomics and Society
Office of the Director, NHGRI

Selected Publications

Berkman BE, Rothenberg KH. Teaching health law. J Law Med Ethics, 40(1):147-53. 2012. [PubMed]

Bush LW, Rothenberg KH. Dialogues, dilemmas, and disclosures: genomic research and incidental findings. Genet Med, 14(3):293-5. 2012. [PubMed]

Rothenberg KH, Bush LW. Genes and plays: bringing ELSI issues to life. Genet Med, 14(2):274-7. 2012. [PubMed]

McCarty CA, Garber A, Reeser JC, Fost NC; Personalized Medicine Research Project Community Advisory Group and Ethics and Security Advisory Board. Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank. Am J Med Genet A, 155A(4):737-41. [PubMed]

Hoffmann DE, Rothenberg KH. Science and law. When should judges admit or compel genetic tests? Science, 14;310(5746):241-2. 2005. [PubMed]

Hoffmann DE, Rothenberg KH. Whose duty is it anyway?: the Kennedy Krieger opinion and its implications for public health research. J Health Care Law Policy, 6(1):109-47. 2002. [PubMed]

Rothenberg KH. "Being human": cloning and the challenges for public policy. Hofstra Law Rev. 27(3):639-47. 1999. [PubMed]

Rothenberg KH, Terry SF. Human genetics. Before it's too late--addressing fear of genetic information. Science, 12;297(5579):196-7. 2002. [PubMed]

Rothenberg KH, Hornstein AD. Building community, recognizing dignity: beyond the ADA. Ment Phys Disabil Law Rep, 25(5):709-10. 2001. [PubMed]

Rothenberg KH, Rutkin AB. Toward a framework of mutualism: the Jewish community in genetics research. Community Genet, 1(3):148-53. 1998. [PubMed]

Rothenberg KH. Genetic accountability and pregnant women. Womens Health Issues, 7(4):215-9. 1997. [PubMed]

Wilfond BS, Rothenberg KH, Thomson EJ, Lerman C.Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health. J Law Med Ethics, 25(4):243-51, 230. 1997. [PubMed]

Rothenberg KH. Breast cancer, the genetic "quick fix," and the Jewish community. Ethical, legal, and social challenges. Health Matrix Clevel, 7(1):97-124. 1997. [PubMed]

Rothenberg KH. Genetic discrimination and health insurance: a call for legislative action. J Am Med Womens Assoc, 52(1):43-4. 1997. [PubMed]

Rothenberg KH, Hayunga EG, Rudick JE, Pinn VW. The NIH inclusion guidelines: challenges for the future. IRB, 18(3):1-4, 12. 1996. [PubMed]


Women and Prenatal Testing: Facing the Challenges of Genetic Technology (1994) (editor, with E. Thomson).

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Posted: September 10, 2012