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Barbara Bowles Biesecker, Ph.D.

Associate Investigator, Social and Behavioral Research Branch
Head, Genetic Services Research Unit
Director, JHU/NHGRI Genetic Counseling Training Program

Selected Publications

Bann CM, Abresch RT, Biesecker BB, Conway KC, Heatwole C, Peay H, Scal P, Stober J, Uzark K, Wolff J, Margolis M. Measuring quality of life in muscular dystrophy. Neurology, 84(10):1034-42. 2015. [PubMed]

Schaa K, Roter D, Biesecker B, Cooper L, Erby L. Genetic counselors' implicit racial attitudes and their relationship to communication. Health Psychol,  34(2):111-9. 2015. [PubMed]

Lewis KL, Hooker GW, Connors PD, Hyams TC, Wright MF, Caldwell S, Biesecker LG, Biesecker BB. Participant experiences receiving incidental findings through genome sequencing: a mixed-methods study. Genome Med, Nov 5. doi: 10.1038/gim.2015.133.  2015. [PubMed]  

Biesecker BB, Klein WM, Lewis K, Fisher TC, Wright MF, Biesecker LG, Han PK. How do research participants perceive "uncertainty" in genome sequencing? Genet Med, 16(12):977-80. 2014. [PubMed]

Taber JM, Klein WM, Ferrer RA, Lewis KL, Biesecker LG, Biesecker BB. Dispositional optimism and perceived risk interact to predict intentions to learn genome sequencing results. Health Psychol, 34(7):718-28. 2014. [PubMed]

Gray S, Martins Y, Feuerman LZ, Bernhardt BA, Biesecker BB, Christensen KF, Joffe S, Rini C, Veenstra D, McGuire AL and Members CSER Consortium Outcomes and Measures Working Group. Social and Behavioral Research in Genomic Sequencing- Approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group. Genet Med, doi: 10.1038/gim.2014.26. 2014. [PubMed]

Peay HL, Tibben A, Fisher T, Brenna E, Biesecker BB. Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy. Clin Trials, 11(1):77-85. 2014. [PubMed]

Peay HL, Rosenstein DL, Biesecker BB. Parenting with bipolar disorder: coping with risk of mood disorders to children. Soc Sci Med, 104:194-200. 2014. [PubMed]

Sapp J, Dong D, Stark C, Ivey L, Hooker G, Biesecker L, Biesecker B. Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children. Clin Genet, doi: 10.1111/cge.12254. 2013. [PubMed]
Biesecker BB, Erby LH, Woolford S, Adcock JY, Cohen JS, Lamb A, Lewis KV, Truitt M, Turriff A, Reeve BB. Development and validation of the Psychological Adaptation Scale (PAS): Use in six studies of adaptation to a health condition or risk. Patient Educ Couns, 93(2):248-54. 2013. [PubMed]

Facio FM, Eidem H, Fisher T, Brooks S, Linn A, Kaphingst KA, Biesecker LG, Biesecker BB. Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study. Eur J Hum Genet, 21(3):261-5. 2013. [PubMed]

Shiloh S, Wade CH, Roberts JS, Alford SH, Biesecker BB. Associations between risk perceptions and worry about common diseases: a between- and within-subjects examination. Psychol Health, 28(4):434-49. 2013. [PubMed]

McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Point-counterpoint. Ethics and genomic incidental findings. Science, 340(6136):1047-8. 2013. [PubMed]

Biesecker BB, Schwartz MD, Marteau TM. Enhancing informed choice to undergo health screening: a systematic review. Am J Health Behav, 37(3):351-9. 2013. [PubMed]

Truitt M, Biesecker B, Capone G, Bailey T, Erby L. The role of hope in adaptation to uncertainty: the experience of caregivers of children with Down syndrome. Patient Educ Couns, 87(2):233-8. 2012. [PubMed]

Wade CH, Shiloh S, Roberts JS, Hensley Alford S, Marteau TM, Biesecker BB. Preferences among diseases on a genetic susceptibility test for common health conditions: an ancillary study of the multiplex initiative. Public Health Genomics, 15(6):322-6. 2012. [PubMed]

Wade CH, Shiloh S, Woolford SW, Roberts JS, Alford SH, Marteau TM, Biesecker BB. Modelling decisions to undergo genetic testing for susceptibility to common health conditions: an ancillary study of the Multiplex Initiative. Psychol Health, 27(4):430-44. 2012. [PubMed]

Facio FM, Brooks S, Loewenstein J, Green S, Biesecker LG, Biesecker BB. Motivators for participation in a whole-genome sequencing study: implications for translational genomics research. Eur J Hum Genet, 19(12):1213-7. 2011. [PubMed]

Sutton, E., Young, J., McInerney-Leo, A., Bondy, C., Gollust, S., Biesecker, B. Truth Telling and Turner Syndrome: The Impact of Diagnostic Disclosure. J Pediatr, 148(1):102-107. 2006. [PubMed]

Gooding, H., Organista, K., Burak, J., Biesecker, B. Genetic Susceptibility Testing from a Stress and Coping Perspective. Soc Sci Med, 62(8):1880-1890. 2006. [PubMed]

Gollust, S., Apse, K., Fuller, B., Miller, P.S., Biesecker, B.B. Community involvement in policy-making for genetic tests: assessing the interests and experiences of affected individuals. Am J Public Health, (1):35-41. 2005. [PubMed]



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Last Updated: December 30, 2015