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Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.

The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit

Updates regarding government operating status and resumption of normal operations can be found at

How to Contact a Genetics and Rare Diseases Information Specialist

By Telephone:

Monday - Friday, 12:00 p.m. to 6:00 p.m. Eastern Time

  • Phone: (888) 205-2311
  • International Phone: 1 (301) 251-4925
  • TTY: (888) 205-3223

By E-mail Form or Fax:

  • E-mail Form: Contact Us []
    On the NIH Office of Rare Diseases Research Web site.
  • Fax: (301) 251-4911

By U.S. Mail:

  • The Genetic and Rare Diseases Information Center
    P.O. Box 8126
    Gaithersburg, MD 20898-8126

Note: The GARD Information Center does not provide genetic counseling and does not offer diagnostic testing, referrals, medical treatment or advice.

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Last Updated: July 1, 2013

On Other Sites:

YouTube videoAdvice from the Genetic and Rare Diseases Information Center
NCATS NIH - 6 videos

Genetic and Rare Diseases Information Center (GARD)