Karen H. Rothenberg, J.D., M.P.A.

Senior Advisor to the NHGRI Director on Genomics and Society
Office of the Director, NHGRI

Selected Publications

Berkman BE, Rothenberg KH. Teaching health law. J Law Med Ethics, 40(1):147-53. 2012. [PubMed]

Bush LW, Rothenberg KH. Dialogues, dilemmas, and disclosures: genomic research and incidental findings. Genet Med, 14(3):293-5. 2012. [PubMed]

Rothenberg KH, Bush LW. Genes and plays: bringing ELSI issues to life. Genet Med, 14(2):274-7. 2012. [PubMed]

McCarty CA, Garber A, Reeser JC, Fost NC; Personalized Medicine Research Project Community Advisory Group and Ethics and Security Advisory Board. Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank. Am J Med Genet A, 155A(4):737-41. [PubMed]

Hoffmann DE, Rothenberg KH. Science and law. When should judges admit or compel genetic tests? Science, 14;310(5746):241-2. 2005. [PubMed]

Hoffmann DE, Rothenberg KH. Whose duty is it anyway?: the Kennedy Krieger opinion and its implications for public health research. J Health Care Law Policy, 6(1):109-47. 2002. [PubMed]

Rothenberg KH. "Being human": cloning and the challenges for public policy. Hofstra Law Rev. 27(3):639-47. 1999. [PubMed]

Rothenberg KH, Terry SF. Human genetics. Before it's too late--addressing fear of genetic information. Science, 12;297(5579):196-7. 2002. [PubMed]

Rothenberg KH, Hornstein AD. Building community, recognizing dignity: beyond the ADA. Ment Phys Disabil Law Rep, 25(5):709-10. 2001. [PubMed]

Rothenberg KH, Rutkin AB. Toward a framework of mutualism: the Jewish community in genetics research. Community Genet, 1(3):148-53. 1998. [PubMed]

Rothenberg KH. Genetic accountability and pregnant women. Womens Health Issues, 7(4):215-9. 1997. [PubMed]

Wilfond BS, Rothenberg KH, Thomson EJ, Lerman C.Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health. J Law Med Ethics, 25(4):243-51, 230. 1997. [PubMed]

Rothenberg KH. Breast cancer, the genetic "quick fix," and the Jewish community. Ethical, legal, and social challenges. Health Matrix Clevel, 7(1):97-124. 1997. [PubMed]

Rothenberg KH. Genetic discrimination and health insurance: a call for legislative action. J Am Med Womens Assoc, 52(1):43-4. 1997. [PubMed]

Rothenberg KH, Hayunga EG, Rudick JE, Pinn VW. The NIH inclusion guidelines: challenges for the future. IRB, 18(3):1-4, 12. 1996. [PubMed]


Women and Prenatal Testing: Facing the Challenges of Genetic Technology (1994) (editor, with E. Thomson).

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Posted: September 10, 2012