National Human Genome Research Institute

Sharing Family Health Information About Sickle Cell Disease and Sickle Cell Trait

Study Resources

Study Brochure

Study Flyer

Additional Studies

NHGRI Sickle Cell Studies on ClinicalTrials.gov

• Sharing Family Health Information about Sickle Cell Disease and Sickle Cell Trait
  See details about our protocol in its larger study context on ClinicalTrials.gov (NCT01633021)
• INSIGHTS into Microbiome and Environmental Contributions to Sickle Cell Disease and Leg Ulcers
   On ClinicalTrials.gov page  NCT02156102

Other Sickle Cell Studies on ClinicalTrials.gov

• NIH Sickle Cell Studies: From National Heart Lung and Blood Institute (NHLBI), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institute of Biomedical Imaging and Bioengineering (NIBIB) and on ClinicalTrials.gov.
  • NHLBI: Natural History of Sickle Cell Disease and Other Hemolytic Disorders (NCT00081523)
  • NHLBI: Genetics and Pain Severity in Sickle Cell Disease (NCT01441141)
  • NHLBI: Collection and Storage of Umbilical Cord Stem Cells for Treatment of Sickle Cell Disease (NCT00012545)
  • NHLBI/NIDDK: Secondary Pulmonary Hypertension in Adults With Sickle Cell Anemia (NCT00011648)
  • NHLBI/NIDDK: Evaluation of Sickle Cell Liver Disease (NCT01950429)
  • NHLBI: Assessment of Algorithm-Based Hydroxyurea Dosing on Fetal Hemoglobin Response, Acute Complications, and Organ Function in People With Sickle Cell Disease (NCT02225132)
  • NHLBI/NIAID/NIBIB: Blood Flow and Pain Crises in People With Sickle Cell Disease (NCT01568710)
• Additional Sickle Cell Studies: ClinicalTrials.Gov 

Additional Resources

• CDC: Sickle Cell Disease and Sickle Cell Trait Information
• National Heart, Lung, and Blood Institute (NHLBI): Explore Sickle Cell Disease
• National Library of Medicine, Genetics Home Reference: Sickle Cell Disease
• Sickle Cell Information Center
• NHGRI: Learning About Sickle Cell Disease
• CDC Sickle Cell Disease National Resource Directory

Interviews and Articles

• NHGRI Interview with Laura Koehly, Ph.D., and Vence Bonham, J.D.
• Our healthcare system abandons adult sickle cell patients: The Washington Post, March 21^st 2016

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Last Updated: December 21, 2016