Sickle Cell Study: Resources

Sharing Family Health Information About Sickle Cell Disease and Sickle Cell Trait

Study Resources

Study Brochure

Study Flyer

Additional Studies

NHGRI Sickle Cell Studies on ClinicalTrials.gov

• Sharing Family Health Information about Sickle Cell Disease and Sickle Cell Trait
  See details about our protocol in its larger study context on ClinicalTrials.gov (NCT01633021)
• INSIGHTS into Microbiome and Environmental Contributions to Sickle Cell Disease and Leg Ulcers
   On ClinicalTrials.gov page  NCT02156102

Other Sickle Cell Studies on ClinicalTrials.gov

• NIH Sickle Cell Studies: From National Heart Lung and Blood Institute (NHLBI), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institute of Biomedical Imaging and Bioengineering (NIBIB) and on ClinicalTrials.gov.
  • NHLBI: Natural History of Sickle Cell Disease and Other Hemolytic Disorders (NCT00081523)
  • NHLBI: Genetics and Pain Severity in Sickle Cell Disease (NCT01441141)
  • NHLBI: Collection and Storage of Umbilical Cord Stem Cells for Treatment of Sickle Cell Disease (NCT00012545)
  • NHLBI/NIDDK: Secondary Pulmonary Hypertension in Adults With Sickle Cell Anemia (NCT00011648)
  • NHLBI/NIDDK: Evaluation of Sickle Cell Liver Disease (NCT01950429)
  • NHLBI: Assessment of Algorithm-Based Hydroxyurea Dosing on Fetal Hemoglobin Response, Acute Complications, and Organ Function in People With Sickle Cell Disease (NCT02225132)
  • NHLBI/NIAID/NIBIB: Blood Flow and Pain Crises in People With Sickle Cell Disease (NCT01568710)
• Additional Sickle Cell Studies: ClinicalTrials.Gov 

Additional Resources

• CDC: Sickle Cell Disease and Sickle Cell Trait Information
• National Heart, Lung, and Blood Institute (NHLBI): Explore Sickle Cell Disease
• National Library of Medicine, Genetics Home Reference: Sickle Cell Disease
• Sickle Cell Information Center
• NHGRI: Learning About Sickle Cell Disease
• CDC Sickle Cell Disease National Resource Directory

Interviews and Articles

• NHGRI Interview with Laura Koehly, Ph.D., and Vence Bonham, J.D.
• Our healthcare system abandons adult sickle cell patients: The Washington Post, March 21^st 2016

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Last Updated: December 21, 2016