Genome Statute and Legislation Database
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during the 2002-2024 U.S. state legislative sessions.
State | Primary Link | Topic(s) | Bill Status Sort descending | Summary |
---|---|---|---|---|
New Hampshire | New Hampshire SB 240 | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
Texas | Texas HB 2545 | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
Pennsylvania | Pennsylvania SB 8 | Coverage and reimbursement | Approved | An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost... |
Montana | Montana HB 682 | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
California | 2020 State Bills California 2020 AB 3215 | Other Topics | Died | Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote intersocial education designed to foster mutual respect and understanding among California�s diverse population. Appointees to the commission are comprised of experts in combating hate, intolerance, and discrimination on the basis of various factors such as genetic information. Died. |
Wisconsin | 2019 State Bills Wisconsin 2019 SB 366 | Employment Nondiscrimination | Died | Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1. |
Hawaii | 2013 State Bills Hawaii 2013 HB 540 | Health Insurance Nondiscrimination | Died | The board of the Hawaii employer-union health benefits trust fund must require every health benefits plan established or contracted to include lower deductibles and co-payments for non-smokers of tobacco and other persons engaged in low risk health behaviors that are designed, in compliance with applicable federal and state laws, to encourage preventative health care, promote wellness, and discourage medically unnecessary use of health care services; provided that the board consults with medical professionals to determine what should be included as low risk health behaviors. Genetic factors and pre-existing medical conditions may not be considered as a behavior when determining what constitutes low risk behavior. Died. |
Maine | 2017 State Bills Maine 2017 LD 1452 | Privacy | Died | The department of education, a school administrative unit or a state agency may not collect, store, transmit or process the certain information, including DNA, from a student without the written consent of a parent or guardian of a student or an eligible student unless otherwise required or authorized by statute or rule. Died. |
Michigan | 2019 State Bills Michigan 2019 SB 333 | Employment Nondiscrimination | Died | Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died. |
Missouri | 2020 State Bills Missouri 2020 HB 2375 | Privacy | Died | Prohibits a person or entity from disclosing, obtaining, retaining, or using any biometric data about an individual, including DNA, with whom the person or entity is engaged in trade or commerce for any purpose other than that which the individual reasonably expects. Died. |
New Mexico | 2013 State Bills New Mexico 2013 HB 168 | Health Insurance Nondiscrimination | Died | Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes of limiting or excluding benefits in the absence of a diagnosis of the condition related to the genetic information. (Provision related to genetic information is in Committee Substitute version) Died. |
New York | 2019 State Bills New York 2019 A1890 | Employment Nondiscrimination | Died | Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died. |
South Dakota | 2012 State Bills South Dakota 2012 HB 1260 | Health Insurance Nondiscrimination | Died | This bill repeals the authority of the director of the Division of Insurance to promulgate rules governing use of genetic information and enacts certain provisions regarding the use of genetic information. Measure failed. |
Alabama | 2016 State Bills Alabama 2016 SB 318 | Privacy | Died | Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died. |
Washington | 2019 State Bills Washington 2019 SB 5805 | Health Insurance Nondiscrimination | Died | Making state law consistent with selected federal consumer protections in the patient protection and affordable care act. Prohibits a health carrier or health plan from establishing rules for eligibility based on health-status related factors such as genetic information. Died. |
Delaware | 2019 State Bills Delaware 2019 SB 17 | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic characteristics and information in the issuance or renewal of disability and long term care insurance. Insurers also must provide notice if a genetic test is required. Died. |
Illinois | 2020 State Bills Illinois 2020 SB 3092 | Privacy | Died | Amends the Genetic Information privacy Act. Requires informed consent for a person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes. Died. |
Maryland | 2017 State Bills Maryland 2017 HB 1489 | Other Topics | Died | Removes the ban on directly or indirectly advertising for or soliciting business for any medical laboratory, regardless of location, from anyone except a physician, hospital, medical laboratory, clinic, clinical installation, or other medical care facility. Died. |
Massachusetts | 2017 State Bills Massachusetts 2017 H.3969 | Health Insurance Coverage | Died | Requires coverage for the diagnosis of Alfi's Syndrome, including genetic testing. 7/18/2018 Accompanied a study order, see H4778. |
Mississippi | 2010 State Bills Mississippi 2010 HB 378 | Health Insurance Nondiscrimination | Died | This bill creates the genetic nondiscrimination in health insurance act. No health benefit plan may cancel, deny or refuse to renew benefits or coverage based on genetic information. This bill also places restrictions on health benefit plan's ability to request or require disclosure of genetic information. Measure failed. |
New Hampshire | 2020 State Bills New Hampshire 2020 HB 1680 | Privacy | Died | Grants consumers the right to request that a business disclose the type of personal information it collects, the purpose for which it is collected, and the categories of third parties with which it is shared. Authorizes consumers to opt out of the sale of their personal information. Personal information is defined to include biometric information such as an individual's DNA. 10/29/2020 Interim Study Report: Recommended for Future Legislation (Vote 10-5). Died. |
New York | 2013 State Bills New York 2013 A506 | Use of Residual Newborn Screening Specimens | Died | This bill requires written parental consent to store a newborn's test, blood spot or other genetic information for any purpose other than newborn screening. Died. |
North Carolina | 2019 State Bills North Carolina 2019 HB 514 | Other Topics | Died | Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died. |
Utah | 2021 State Bills Utah 2021 HB 274 | Privacy | Died | Requires a government agency to make an annual report to the state auditor regarding: the government agency's collection, use, and disclosure of personal identifying information; any misuse or improper disclosure of personal identifying information; and measures taken to notify individuals of any misuse or improper disclosure. Personal identifying information includes DNA. 3/5/2021 House filed. |
Massachusetts | 2019 State Bills Massachusetts 2019 H.180 | Other Topics | Died | Pertains to municipal master plans. Master plans developed should take into account to the extent feasible ways in which future policies and programs can advance equity based on various factors such as genetic information. Died. |
Mississippi | 2016 State Bills Mississippi 2016 Senate Bill 2547 | Privacy | Died | Allows parents to opt out of certain activities conducted by the public school districts, including the collection of biometric information. Biometric information is defined to include DNA. 2/23/2016 (S) Died In Committee. |
New Jersey | 2018 State Bills New Jersey 2018 S3153 | Privacy | Died | This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died. |
New York | 2015 State Bills New York 2015 A318 | Health Insurance Coverage | Died | The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a significant risk of cancer. Died. |
Oklahoma | 2014 State Bills Oklahoma 2014 SB 2070 | Privacy | Died | This bill prohibits collection or retention of biometric data in connection with motor vehicle registration or operation, the issuance or renewal of driver licenses or the issuance or renewal of any identification cards by any department or agency of this state charged with those activities. Died. |
Virginia | 2008 State Bills Virginia 2008 HB 593 | Health Insurance Nondiscrimination | Died | This bill prohibits the establishment of rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, in Virginia share health insurance policies. This bill also prohibits pre-existing condition exclusions in these policies based on genetic information in the absence of a diagnosis of a condition related to such information. Measure failed. |
Colorado | 2015 State Bills Colorado 2015 HB 1199 | Privacy | Died | This bill requires a state agency or educational institution to obtain consent from parents or eligible students prior to collecting certain data, including biometric records. Biometric records are defined to include DNA. Died. |
Hawaii | 2020 State Bills Hawaii 2020 SB 2539 | Health Insurance Coverage | Died | Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died. |
Maryland | 2009 State Bills Maryland 2009 SB 1 | Health Insurance Nondiscrimination, Other Lines of Insurance Nondiscrimination | Died | This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed. |
Maryland | 2021 State Bills Maryland 2021 HB 218 | Privacy | Died | Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the House - Withdrawn by Sponsor. Died. |
Minnesota | 2012 State Bills Minnesota 2012 HF 3025 | Privacy | Died | This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed. |
Montana | 2017 State Bills Montana 2017 HB 392 | Other Lines of Insurance Nondiscrimination | Died | Creates the Montana family and medical leave insurance fund. Applicants for coverage must provide eligibility documentation. The department may not require documentation that exceeds the right to privacy allowed under HIPAA, the ADA and GINA. Died. |
New York | 2009 State Bills New York 2009 A1445 | Research | Died | This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed. |
New York | 2019 State Bills New York 2019 A8125 | Research | Died | Authorizes human research in compliance with federal law. Substituted by S6488. Senate substitute signed by the Governor on 9/13/19. |
Tennessee | 2020 State Bills Tennessee 2020 SB 1081 | Privacy | Died | Allows the recipient of an organ transplant and referral hospital to examine all genetic records of the donor or prospective donor unless prohibited by any other law. Died. |
Arizona | 2018 State Bills Arizona 2018 HB 2450 | Privacy | Died | Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died. |
West Virginia | 2014 State Bills West Virginia 2014 SB 420 | Privacy | Died | Creates a Longitudinal Data System, which links child care, student and workforce unit record data, and governing board of the system. The governing board must prohibit the collection of confidential information, which includes genetic information. Died. |
Florida | 2018 State Bills Florida 2018 SB 1106 | Other Lines of Insurance Nondiscrimination | Died | Prohibits life insurers and long-term care insurers from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information, if there is no diagnosis of a condition related to the genetic information. The bill also prohibits these insurers from requiring or soliciting genetic information, using genetic test results, or considering a person�s decisions or actions relating to genetic testing for any insurance purpose. 3/10/2018 Died in Rules. |
Kansas | 2014 State Bills Kansas 2014 HB 2621 | Privacy | Died | The state board, the department of education, a unified school district or local education agency may not provide any personally identifiable information of any student or teacher, including a DNA sequence, to any federal agency, any Kansas state or local agency, state or local agency outside the state of Kansas, or any other organization or entity unless under specified circumstances. Died. |
Maryland | 2019 State Bills Maryland 2019 HB 716 | Privacy | Died | Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. |
Massachusetts | 2020 State Bills Massachusetts 2020 S.2800 | Privacy | Died | Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 7/14/20 Passed to be engrossed. Reprinted as amended, see S2820. Died. |
Missouri | 2014 State Bills Missouri 2014 HB 1873 | Privacy | Died | This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died. |
New Jersey | 2020 State Bills New Jersey 2020 S1136 | Other Topics | Died | Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died. |
New York | 2017 State Bills New York 2017 A8752 | Employment Nondiscrimination | Died | Prohibits clients and modeling agencies from subjecting a model to harassment based on various characteristics, including predisposing genetic characteristics, where such harassment has the purpose or effect of unreasonably interfering with an individual's provision of modeling services by creating an intimidating, hostile, or offensive environment. Died. |
Rhode Island | 2019 State Bills Rhode Island 2019 S234 | Privacy | Died | Enacts the Consumer Protection privacy Act. Establishes consumer protections pertaining to the collection and use of personal information, including an individual's DNA, by businesses. Died. |
Virginia | 2020 State Bills Virginia 2020 HB 553 | Employment Nondiscrimination | Died | Requires the legislative branch of the Commonwealth to develop a policy on workplace harassment. Workplace harassment is defined as any unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of various factors, including genetics. Died. |
Last updated: February 8, 2024