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2008 National DNA Day Online Chatroom Transcript

This is just one question from an archive of the National DNA Day Moderated Chat held in April 2008. The NHGRI Director and many genomics experts from across NHGRI took questions from students, teachers and the general public on topics ranging from basic genomic research, to the genetic basis of disease, to ethical questions about genetic privacy.


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What is your job, Sharon?
     Sharon Terry, M.A.: Runs the Genetic Alliance, a coalition of over 600 disease specific advocacy organizations working to increase capacity in advocacy organizations and to leverage the voices of the millions of individuals and families affected by genetic conditions. My job is not typical! I am the leader of two organizations. One organization, PXE International, is a disease support group for a disease my children have called pseudoxanthoma elasticum. The other organization is called Genetic Alliance, and it is a network of many many organization and companies. Our work is to transform health through genetics, specifically by helping maintain a focus on what really matters, mainly the health of individuals, families and communities.
Holy Family Catholic High School in MN (9th grade student)


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