Genetic Discrimination and the Workplace Workshop

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services

National Institutes of Health - Department of Energy, ELSI Working Group and National Action Plan on Breast Cancer Workshop on Genetic Discrimination and the Workplace:
Implications for Employment, Insurance and Privacy

Bethesda, Maryland
October 4, 1996

Members of the Ethical, Legal and Social Implications (ELSI) Working Group and the National Action Plan on Breast Cancer (NAPBC), genetics and health care professionals, lawyers, representatives from the insurance industry, and representatives from a number of federal agencies participated in this one-day workshop focusing on genetic discrimination and the workplace.

Based on the information presented at the workshop, the ELSI Working Group and the NAPBC developed a series of recommendations for state and federal policy-makers to protect against genetic discrimination in employment decisions.


(For a more complete discussion of the recommendations see the news release: Government-Citizen Group Suggests Policies to Limit Genetic Discrimination in the Workplace or Rothenberg, K. et. al. "Genetic Information and the Workplace: Legislative Approaches and Policy Challenges." Science, 275: 1755-1757. 1997. [PubMed]

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Last Updated: October 1, 2012