Genetic Discrimination and Health Insurance Workshop

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


National Institutes of Health-Department of Energy, ELSI Working Group
and National Action Plan on Breast Cancer Workshop
on Genetic Discrimination and Health Insurance

National Institutes of Health
Bethesda, Maryland

July 19, 1995

Scientists, representatives from the insurance industry and members of the Ethical Legal and Social Implications (ELSI) Working Group and the National Action Plan on Breast Cancer (NAPBC) participated in this one-day session focusing on genetic discrimination and health insurance. Based on the information presented at the workshop, the ELSI Working Group and the NAPBC developed a series of recommendations and definitions for state and federal policymakers to protect against genetic discrimination.

Recommendations

Definitions

For a more complete discussion of the recommendations see: Hudson, K.L. et al. Genetic Discrimination and Health Insurance: An Urgent Need for Reform. Science, 70; 391-393. 1997. [PubMed]

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Last Reviewed: October 1, 2012