This workshop, which was co-sponsored by the Centers for Disease Control and Prevention (CDC) and the National Center for Human Genome Research (NCHGR), brought together a group of scientists, ethicists, lawyers and consumers to examine the current policies regarding the use of stored tissue samples for genetic studies and to develop guidance for use by institutions and state and federal agencies in formulating their own policies regarding the use of such samples. The primary focus of this meeting was obtaining informed consent for the use of stored tissue samples for genetics research.
For a more complete discussion of the recommendations see: Clayton, E.W. et al. "Informed Consent for Genetic Research on Stored Tissue Samples." JAMA. December 13, 1995: 274(22); 1786-1792.
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Last Reviewed: October 1, 2012