Congressional Hearings and Testimony on Genetic Discrimination

National Human Genome Research Institute

National Institutes of Health
U.S. Department of Health and Human Services


Congressional Hearings and Testimony on Genetic Discrimination in Health Insurance and Employment

The House and Senate have held several hearings on the subject of genetic discrimination in the past few years. Francis S. Collins was a witness at the July 11, 2001 hearing before the Senate Labor, Health & Human Services and Education Appropriations Committee regarding the future of genomic science, which included a discussion of genetic discrimination.

Dr. Collins also testified on July 25, 2001 at a hearing before the Senate Health, Education, Labor and Pensions (HELP) Committee on genetic discrimination in insurance. On February 13, 2002, the HELP committee held a hearing focusing on issues of genetic discrimination in employment.

February 13, 2002, Testimony of Bobby Jindal, former HHS Assistant Secretary for Planning and Evaluation
Bobby P. Jindal testified before the Senate Commitee on Health, Education, Labor and Pensions.

July 11, 2001, Testimony, Francis S. Collins
NHGRI Director Dr. Francis Collins testifies before Appropriations Subcommittee On Labor, Health and Human Services and Education, United States Senate.

July 25, 2001, Testimony, Francis S. Collins
NHGRI Director Dr. Francis Collins testifies before Health, Education, Labor and Pensions Committee (HELP), United States Senate.

April 2001 EEOC Settles ADA Suit Against BNSF for Genetic Bias [eeoc.gov]
EEOC news release: First Commission Legal Action Challenging Workplace Genetic Testing Under Disabilities Act.

July 20, 2000, Testimony Francis S. Collins
NHGRI Director Dr. Francis Collins testifies before the Health, Education, Labor, and Pensions Committee, United States Senate.

July 20, 2000, Testimony Paul S. Miller
Equal Employment Opportunity Commissioner Paul S. Miller testifies before the Health, Education, Labor, and Pensions Committee, United States Senate.

May 21, 1998, Testimony on Preventing Genetic Discrimination in Health Insurance [hhs.gov]
NHGRI Director Francis S. Collins, M.D., Ph.D., before the Senate Committee on Labor and Human Resources.

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Last Reviewed: March 7, 2012