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Topic Summary
Delaware State Statute:
opens new window Delaware: Del. Code 16 §1201 et seq.
Informed consent is required to obtain or retain genetic information about an individual. Exemptions include anonymous research where the identity of the subject will not be released. A sample from which genetic information has been obtained must be promptly destroyed with certain exceptions, including retention for anonymous research. An individual may inspect, request correction of and obtain genetic information from the records of that individual. The law sets forth civil penalties for violations.

Last Reviewed: May 25, 2018