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Staff
Jennifer Strasburger is the lead Genomic Program Administrator (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC).
… (gpa) for nhgri as well as the co-chair for the nhgri data access committee ( dac ). she also maintains a portfolio of grants …
Policy Issues
Investigators can access human genomic data through a tiered model of unrestricted-access (i.e., open) and controlled-data access mechanisms.
… investigators can access human genomic data through a tiered model of … access committees ( dacs ). see the listing of dacs and dac chairs . the nhgri dac chair can be reached via email or …
Staff
Dr. Erin M. Ramos is a program director in the Division of Genomic Medicine at the National Human Genome Research Institute.
… program that has produced an online catalog of standard data collection protocols for conducting biomedical research. … sharing policy management task force and chaired the data access committee (dac) for the genetic association information …
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… the update to nih management of genomic summary results access . … genomic summary results (gsr) are the output of analyses of genomic data across the many individual participants included within … access request, which will be reviewed by the data access committee. accessibility of gsr is beneficial because these …
Staff
Barbara Thomas is a scientific review officer for the Center for Inherited Disease Research (CIDR).
… research (cidr) , a trans-nih program that provides access to high throughput genotyping and next-generation … governors, high-level oversight of project management, and data sharing through the database of genotypes and phenotypes … of the nhgri genomic data sharing (gds) governance committee , where she is involved in policy interpretation, …
File
… Jonathan Lawson Next Generation Data Access Models The growing demand of data access requests … data use restrictions ● Interfaces for the Data Access Committee to adjudicate whether structuring and matching has …
File
… 6, 2017 The NHGRI Sandbox – A resource for Genomic Data Sharing and Analysis Purpose This new concept is to … a c loud -based infrastructure to democratize genomic data access by the broad scientific community, and facilitate … (DAR) for review and approval by the NHGRI Data Access Committee (DAC) . The Sandbox will also provide a data access
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… Document # Open Session Presentations  NIH Data Commons Vivien Bonazzi  NHGRI Data Sandbox Valentina Di …  Will solicit feedback on data -submission and data - access processes  Also will include policy-related … 16 David Valle, M.D. Brendan Lee, M.D., Ph.D. New Steering Committee Chair, Global Alliance for Genomics and Health …
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… o #Community#samples# o #Community#data# … #staff#and#the# organizing#committee#(Carol#Bult,#Eric#Boerwinkle,#John#Lis … data curation and public release, a Data Analysis Center (DAC) and an Analysis Working Group (AWG) to assist in and … ENCODE Consortium that allows the scientific community to access these metadata and data as well as serves as a hub for …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… science research need to be balanced - the need to share data broadly to maximize its utility for ongoing scientific … databases and public records. nih therefore controls access to sensitive or potentially identifiable information … the united states and authorizes the secretary's advisory committee on heritable disorders in newborns and children. …