Search Results
Staff
Jennifer Strasburger was the lead Genomic Program Administrator (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC).
… and intramural investigators in depositing genomic data into public repositories such as dbGaP and AnVIL . Ms. … (GPA) for NHGRI as well as the co-chair for the NHGRI Data Access Committee (DAC). … Jennifer Strasburger, Data Access …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Institute, we believe that broadly sharing research data will result in maximum public benefit, and we're committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic Data …
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the … Division of Genomic Medicine  Barbara Thomas, Ph.D. (DAC Chair) Co-Chair Division of Extramural Operations  …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally … research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely … data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled …
Event
The Encyclopedia of DNA Elements (ENCODE) Consortium presented a half-day workshop on the accessibility & utilization of ENCODE data.
… workshop on the accessibility & utilization of ENCODE data. The workshop included an introduction to the ENCODE project and resources available to access ENCODE data, as well as specific research applications using ENCODE …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a …
Policies and Guidance
NHGRI ensures that our website is in compliance with Section 508 of the Rehabilitation Act (29 U.S.C. 794d).
… employees or members of the general public) have access to and use of information and data comparable to that provided to individuals without … electronic information products, visit the United States Access Board  or the official Section 508  website.  … NIH …
News Release
Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy.
… M.D., Ph.D. … Today, we are updating the way we manage data related to the NIH Genomic Data Sharing Policy to again allow unrestricted access to genomic summary results for most of the studies we …
GenomeEd
The GenomeEd Review Committee reviews all newly submitted resources to determine if the resource is current, of excellent quality, accurate, created by experts in the field, and focused on genomics education.
… The GenomeEd Review Committee is composed of healthcare professionals and … physician assistants, and public health professionals. The Committee reviews all newly submitted resources to determine … genomics education. … Member Biographies … GenomeEd Review Committee … The GenomeEd Review Committee reviews all newly …
Professional Development Programs
JHU/NIH GCTP Executive Committee is composed of genetic counselors, social scientists and medical geneticists. Their varied backgrounds are an asset to the Program and to students as they develop their thesis.
… Genome Research Institute, NIH … Members … GCTP Executive Committee … JHU/NIH GCTP Executive Committee is composed of genetic counselors, social … as they develop their thesis. … JHU/NIH GCTP Executive Committee is composed of genetic counselors, social …