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Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute. ​
… Policy and Program Analysis Branch at the National Human Genome Research Institute. Ms. Kapustij spearheads the … Genome Research Institute. … Elena Ghanaim, NIH Genomic Data Sharing (GDS) Policy, Informed Consent, health privacy …
Research at NHGRI
Families Sharing Health Assessment and Risk Evaluation (SHARE) helps you and your family learn how your family health history affects your risk for diseases.
… Disease Worksheets … Families SHARE Workbooks … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps … risk for diseases. It is funded by the National Human Genome Research Institute. Your family health history plays a … diseases. … Families SHARE … Families SHARE … Families Sharing Health Assessment and Risk Evaluation (SHARE) helps …
News Release
The Genetics and Public Policy and Genetics and Education Fellowships provide a pathway for scientists to pursue careers in science policy or education.
… curriculums can be established. … A Pathway to Science Policy and Education Careers One way to ensure that genomic discoveries in the lab drive policy and education for our benefit is to strengthen the … and science education and policy. The National Human Genome Research Institute (NHGRI) and the American Society of …
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… that 20+ years later, we would be surveying the entire genome at once, even going into the ‘difficult regions’ to … genetics and genomics. The platform facilitates resource sharing and community building among ELSI scholars, … from active and collaborative ELSI community members. …   Data sharing is a critical part of the research process that …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… the National Institutes of Health (NIH) put forth a new policy which requires that all NIH-funded investigators who … researcher request to cover studies collecting sensitive data; however, under the new policy, as of October 1, 2017, … of award for grant recipients collecting relevant types of data. Certificates of Confidentiality under the new policy …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … regarding research funding from the National Human Genome Research Institute and the National Institutes of Health. ​ … Human Genome Project, Research Funding, Genomics Research Funding, …
News Release
Cari Young and Julie Nadel join NHGRI as public policy and education fellows.
… said. In September, Ms. Young will join the National Human Genome Research Institute (NHGRI) as the 14th American … Society of Human Genetics (ASHG)/NHGRI Genetics and Public Policy Fellow. She will spend her first four months with the … her to conduct research on RNA, DNA hybrid structures and genome-wide datasets at both the undergraduate and graduate …
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research … ASHG and NHGRI co-sponsor the Genetics and Public Policy Fellowship to give genetics/genomics professionals an opportunity to contribute to the policy-making process. The fellowship is designed as a bridge …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and analysis that enables the National Human Genome Research Institute (NHGRI) to pursue its mission.  … …
News Release
Researchers analyzing human, fly, and worm genomes have found these species have key genomic processes in common, reflecting their shared ancestry.
… human biology and disease. … The studies highlight the data generated by the modENCODE Project and the ENCODE Project, both supported by the National Human Genome Research Institute (NHGRI), part of the National … to compact DNA into the cell nucleus and to regulate genome function by controlling access to DNA. Launched in …