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FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… standards available for qualitative interview data? NHGRI recognizes that methods for de-identification of … Services NIST’s tools for de-identification Guidance on sharing images from the National Cancer Imaging Archive The … the volume of requests anticipated. … The National Human Genome Research Institute hosted an informational webinar, …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… as a @GA4GH Driver Project! These are real-world genomic data initiatives that help develop and pilot GA4GH standards … and tools. https://t.co/CEgIrpVjPi — National Human Genome Research Institute (@genome_gov) September 29, 2023 … … Provide guidance for NHGRI’s implementation of NIH data sharing policies , and promote the proper governance, …
Office of Genomic Data Science
NHGRI is committed to increase the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … in CGDS and facilitate the development of a diverse data science and genomics workforce. For CGDS educational … tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good … … Strengthening the Policy Workforce The National Human Genome Research Institute (NHGRI) and the American Society …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, … of genomics research in our work, including these key policy issues. … NHGRI considers the ethical, legal and … of genomics research in our work, including these key policy issues … About Genomics …
Policies and Guidance
Text, graphics, videos, illustrations and other information on NHGRI websites are in the public domain, unless indicated.
… illustrations and other information on National Human Genome Research Institute (NHGRI) websites are in the public … acknowledgement, such as: "Courtesy: National Human Genome Research Institute" with a link back to genome.gov. … … will abide by the same provisions as the NHGRI Copyright Policy. Please read our full external link disclaimer for …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… Thank you for visiting genome.gov and reviewing our privacy policy. The U.S. Department of Health and Human Services, of … as google.com or bing.com); and, Demographic and interest data. We use this information to measure the number of …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… … Cristina Kapustij, M.S., has been named chief of the Policy and Program Analysis Branch (PPAB) at the National Human Genome Research Institute (NHGRI). In her new role, she will … and Medicine; a policy analyst at the Institute for Genome Sciences and Policy at Duke University; and the …
Policies and Guidance
Frequently Asked Questions regarding the GDS Policy expectations for NHGRI-funded genomic research.
… Policy expectations for NHGRI-funded genomic research. … Data Types NHGRI encourages sharing of all genomic data and data types including, but not … too, single nucleotide polymorphism (SNP) array data, genome sequence data, transcriptomic data, epigenomic data, …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education . The proposed … 88th Meeting of the National Advisory Council for Human Genome Research    February 19, 2020 - Via social media: …