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Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… Frequently Asked Questions Data sharing is an important aspect of the research endeavor that … share both metadata and phenotypic data sharing along with genomic datasets that are required to be shared, in …
The Genomics Landscape
In the February 2, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., talks about the new NIH Data Management and Sharing (DMS) Policy and how it emphasizes the importance of good data management practices.
… genomics research.” All the best, … Genome-wide data from medieval German Jews show that the Ashkenazi … … The effective date for the new NIH Data Management and Sharing (DMS) Policy occurred last month – January 25, 2023. … them. Given the strong commitment of NHGRI researchers to genomic data sharing, the institute believes that the …
Event
On November 30th, 2020, NHGRI convened a virtual meeting for journal editors and NHGRI/NIH staff to discuss genomic data sharing.
… meeting for journal editors and NHGRI/NIH staff to discuss genomic data sharing. The goal of this meeting was to learn more about the …
Staff
Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome Research Institute (NHGRI)
… Elena Ghanaim is the Policy Advisor for Data Science and Sharing within the Office of Genomic Data Science (OGDS) at the National Human Genome …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Human Genome Research Institute, we believe that broadly sharing research data will result in maximum public benefit, and we're committed to providing researchers with access to genomic data. The National Institutes of Health (NIH) Genomic …
Event
On May 19-20, 2016, the National Human Genome Research Institute (NHGRI) hosted a two-day workshop where participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users.
… Update Workshop on Establishing a Central Resource of Data from Genome Sequencing Projects Report Resolving … participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users. … NISC, 5th Floor …
Policies and Guidance
The NHGRI funding policy is aimed at accelerating scientific and medical breakthroughs that improve human health.
… training and career development. … 2022 Final Funding Policy for NHGRI 2021 Final Funding Policy for NHGRI 2020 Final Funding Policy for NHGRI 2019 Final Funding Policy for NHGRI 2017 …
Policies and Guidance
NHGRI encourages you to share your thoughts on the topics explored on genome.gov and other websites we own or administer.
… or to remove comments, that are inconsistent with our policy, at our complete discretion. The views expressed in … NHGRI regards privacy issues can be found at our Privacy Policy . We welcome your comments at any time. However, given … inquiries must be directed to appropriate media contact. … Policy … Prohibited Comments … Comment Policy … The National …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … challenges (from data management to data usage, including policy-related elements) as they relate to all areas of …
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data …