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Health FAQ
Discuss these questions with your doctor or health care provider.
… therapy is an experimental treatment that may improve the health of people with sickle cell disease. The treatment may … of sickle cell gene therapy? … Will gene therapy cure my sickle cell disease? … What are the risks of sickle cell … I have children after I have gene therapy? … Can I pass my sickle cell gene to my children if I have gene therapy? … …
News Release
NHGRI has established the Office of Training, Diversity and Health Equity (TiDHE) to enable the highest level of genomic innovation by fostering diversity and health equity in genomics and genomic medicine. It will also serve as the central coordinating office for training and career development across the Institute.
… training a more diverse genomics workforce and addressing health disparities. … The National Human Genome Research … has established the Office of Training, Diversity and Health Equity (TiDHE) to enable the highest level of genomic innovation by fostering diversity and health equity in genomics and genomic medicine. It will also …
Event
An April 6-7 workshop will emphasize the scientific value of diversity and inclusion as well as identify and prioritize future research needs in genomics to advance health equity.
… a.m. Connecting NHGRI’s Strategic Vision for Genomics with Health Equity Speaker: Eric Green, M.D., Ph.D., National … a.m. - 11:00 a.m. Talk: Setting the Stage: A Vision for Health Equity in Genomics Speaker: Nancy Cox, Ph.D., … 11:00 a.m. - 12:00 p.m. Panel: Moving Forward: From Health Disparities to Health Equity in Genomics Panelists: …
For Patients and Families
Neglected diseases are conditions that inflict severe health burdens on the world's poorest people.
… Neglected diseases are conditions that inflict severe health burdens on the world's poorest people and are often … … Neglected diseases are conditions that inflict severe health burdens on the world's poorest people. Many of these … sanitation, substandard housing and little or no access to health care. … Diseases are said to be neglected if they are …
FAQ
On August 23, 2023, the National Human Genome Research Institute hosted a pre-application webinar for the Investigator-Initiated Research in Genomics and Health Equity RFAs: RFA-HG-23-017 and RFA-HG-23-018.
… RFAs, there must be a clear research focus on genomics and health equity. … Is there a preference of the type of … may propose any design that aligns with a genomics and health equity research question and remains within the budget … of the research team that will carry out the genomics and health equity research. … Does this RFA support research …
Event
On April 10-11, the National Human Genome Research Institute (NHGRI) will sponsor a workshop titled Defining a Clinical Data Ecosystem for Genomic Health in Washington, DC.
… data from lab to EHR to patient/clinician and across health systems Determine informatics standards to be adopted, … titled Defining a Clinical Data Ecosystem for Genomic Health in Washington, DC. In the future, it is likely that … as well as facilitate disease risk modeling and population health genomics. Ideally, this genomic information would …
News
To prevent an emerging genomic technology from contributing to health disparities, a scientific team funded by the National Institutes of Health has devised new ways to improve a genetic testing method called a polygenic risk score.
… an emerging genomic technology from contributing to health disparities, a scientific team funded by the National Institutes of Health has devised new ways to improve a genetic testing … their genomic variants are not represented. Although health disparities often stem from systemic discrimination, …
For Patients and Families
​Genetic tests may be used to identify increased risks of health problems, to choose treatments, or to assess responses to treatments.
… … Genetic tests may be used to identify increased risks of health problems, to choose treatments, or to assess responses … can help explain what results might mean to you and your family. Because genetic testing tells you information about your DNA, which is shared with other family members, sometimes a genetic test result may have …
Event
On September 6, 2023, NHGRI hosts a pre-application webinar for the genomics-enabled learning health systems (gLHS) NOFOs.
… pre-application webinar for the genomics-enabled learning health systems (gLHS) NOFOs: RFA-HG-23-041  and … integration of genomic information in a virtuous learning health system cycle of implementation, evaluation, refinement … Asked Questions … Virtual … Genomics-enabled Learning Health Systems Pre-Application Webinar … On September 6, …
Event
NHGRI, National Institute of Environmental Health Sciences (NIEHS) and National Cancer Institute (NCI) will host a pre-application interactive webinar for the Multi-Omics for Health and Disease program funding opportunity announcements (FOAs): RFA-HG-22-008,
RFA-HG-22-009 and RFA-HG-22-010.
… Institute (NHGRI), National Institute of Environmental Health Sciences (NIEHS) and National Cancer Institute (NCI) … interactive webinar for the Multi-Omics for Health and Disease program funding opportunity announcements … review process: RFA-HG-22-008 : Multi-Omics for Health and Disease — Disease Study Sites (U01 Clinical Trial …