Search Results
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… standards available for qualitative interview data? NHGRI recognizes that methods for de-identification of … are developing, and existing tools may have limitations. NIH guidance refers researchers to the following tools for … identifier to facilitate attribution of data use … Is raw genomic sequence data considered identifiable or …
Event
On May 19-20, 2016, the National Human Genome Research Institute (NHGRI) hosted a two-day workshop where participants were asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users.
… Workshop Report  Roster of Participants … NIH Background Fact Sheet on GWAS Policy Update Workshop on Establishing a Central Resource of Data from Genome Sequencing Projects Report Resolving … asked to weigh the benefits and risks of sharing aggregate genomic data with secondary users. … NISC, 5th Floor …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… privacy provisions, the National Institutes of Health (NIH) put forth a new policy which requires that all … researcher request to cover studies collecting sensitive data; however, under the new policy, as of October 1, 2017, … ​ … 21st Century Cures Act, genetic privacy, genomic privacy, researchers and privacy, researchers' …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … challenges (from data management to data usage, including policy-related elements) as they relate to all areas of …
Organizational Structure
NHGRI’s Office of Genomic Data Science (OGDS) provides leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science.
… Twitter The NIH Cloud Platform Interoperability Effort (NCPI) has been … selected as a @GA4GH Driver Project! These are real-world genomic data initiatives that help develop and pilot GA4GH standards …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… and medical care of Americans is greatly influenced by the policy decisions that guide genomic research and its use in the clinical setting. Understanding the interplay of policy and scientific research is critical to defining good …
Office of Genomic Data Science
NHGRI is committed to increase the availability of educational and research opportunities in computational genomics and data science (CGDS).
… and research opportunities in computational genomics and data science (CGDS). Through recent funding announcements for … cloud workspaces, tools, and services available on NHGRI's Genomic Data Science Analysis, Visualization, and Informatics … (AnVIL) , the All of Us Researcher Workbench , and other NIH cloud-based platforms. By coordinating with these …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … to relevant policies within the grant announcement. … The NIH is the principal federal agency responsible for …
News Release
NIH programs are establishing which genes and genomic variants play a role in human disease, enabling use in medicine and research.
… Institutes of Health are establishing which genes and genomic variants play a role in human disease, enabling their use in genomic medicine and research. NIH's Clinical Genome Resource ( ClinGen ) and ClinVar … experts to develop standard processes for reviewing data about gene variants and their connections to health and …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, … of genomics research in our work, including these key policy issues. … NHGRI considers the ethical, legal and … of genomics research in our work, including these key policy issues … About Genomics …