Search Results
Staff
Julie Sapp is a genetic counselor in the NHGRI in the Genomic Services Research Program (GSRP).
… team where she draws upon her genetic counseling training and over a decade of behavioral science research experience to promote the … positioned her to investigate a varied set of important social and behavioral questions related to the practice of …
Talking Glossary
La raza es una construcción social que se utiliza para clasificar a las personas.
… Raza … La raza es una construcción social que se utiliza para clasificar a las personas. … Race is a social construct used to group people. Race was constructed … generating racial classifications to identify, distinguish and marginalize some groups across nations, regions and the …
Research at NHGRI
NHGRI researchers are creating foundational tools and methods to expand genomics research, ultimately leading to medical breakthroughs.
… Genetic diseases affect millions of Americans every day, and research is key to improving our ability to diagnose and treat these diseases. At the National Human Genome …
Research Funding
Frequently asked questions for Investigator-Initiated Research on Genetic Counseling Processes and Practices FOAs (RFA-HG-20-048 and RFA-HG-20-049).
… … Funding Opportunity Announcements ( RFA-HG-20-048 and RFA-HG-20-049 )  Can a genetic counselor consultant … experience need(s) to be an integral part of the research team including being involved in research design, implementation, and analyses, not just providing advice and guidance.  Can I …
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… Trans-NIH Workshop to Explore the Ethical, Legal and Social Implications (ELSI) of Citizen Science … National … raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI …
For Patients and Families
​Clinical research is research conducted with human subjects, or material of human origin, in which the researcher directly interacts with human subjects.
… Clinical research is research conducted with human subjects, or … for studying the fundamental mechanisms of inherited and acquired genetic disorders. … Clinical research is … of those interventions on health-related biomedical or behavioral outcomes. … Clinical trials of experimental drugs …
Research at NHGRI
The Division of Intramural Research conducts scientific studies in NHGRI's labs on and around the NIH campus in Bethesda, Md.
… sites, including the Bayview campus in Baltimore, Maryland and the Twinbrook complex in Rockville, Maryland. The …  - a group that provides expert external oversight for all research and training ongoing in the NHGRI Division of Intramural …
Research at NHGRI
A list of scientific and clinical research investigators at NHGRI.
… Cores … Adjunct Investigators … Scientist Emeriti … Research Investigators … A list of scientific and clinical research investigators at the National Human Genome Research Institute. … A list of scientific and clinical research investigators at NHGRI. … Research at …
Research at NHGRI
NHGRI's research focuses on the understanding of human biology and developing new methods for treating disease.
… The National Human Genome Research Institute (NHGRI) conducts a broad program of laboratory and clinical research to translate genomics into a greater understanding of human biology and develop better methods for the detection, prevention and …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … in the studies. This raises the question of when and how it is appropriate for the scientists to look for and share such research findings. … There are ongoing …