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Staff
Mr. Benjamin Berkman is the deputy director of NHGRI's Bioethics Core.
… graduate training focused on health law, public health and bioethics. After graduate school, Mr. Berkman served as the … program, Mr. Berkman is the Deputy Director of the NHGRI Bioethics Core, which provides bioethics education, consultation, and administrative support …
Staff
Dr. Sara Chandros Hull is a deputy scientific director in the Office of the Scientific Director and the director of NHGRI's Bioethics Core.
… since 1999, holds joint appointments as director of the Bioethics Core of the National Human Genome Research Institute (NHGRI); faculty in the Department of Bioethics, where her research and capacity building interests … science research methods to conduct empirical research in bioethics and public health policy. During her graduate …
Clinical Research
The Institutional Review Board (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… and Research (PRIMR) The IRB Forum American Society for Bioethics and Humanities (ASBH) Association for the … … Overview … Resources … Explore this Page … Contacts … Bioethics Core/Institutional Review Board … The Institutional …
Profile
In an interview, Boyer reflects on her NHGRI career, the history of the NHGRI ELSI Research Program and the exciting future of research at the interface of ethics and genomics.
… for clarity. … Joy Boyer retires after championing bioethics research at the cutting-edge of genomics … In an …
About NHGRI
The National Human Genome Research Institute is proposing a reorganization of the Division of Policy, Communications and Education.
… reorganization aims to enhance synergies in the areas of bioethics, policy, education, engagement and communication. … … Organization, organizational structure, reorganization, bioethics, policy, education, engagement, communication … The …
Staff
Shawneequa Callier is a special volunteer at NHGRI's Center for Research on Genomics and Global Health.
… Shawneequa Callier, J.D., M.A. Bioethics, is an Associate Professor with tenure in the … Genome Research Institute, NIH. Professor Callier teaches bioethics courses in the SMHS Translational Health Sciences … Human Genome Research Institute and located in the Bioethics Department of Case Western Reserve University’s …
News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… to bring together experts in wide-ranging fields - bioethics, law, behavioral and social sciences, epidemiology, … to bring together experts in the wide-ranging fields of bioethics, law, the humanities, the behavioral and social … Division of Genomics and Society, Lawrence Brody Ph.D., bioethics and genomic research, CRISPR-Cas9 … NIH will hold a …
The Genomics Landscape
In May 4, 2023 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details a report released by the National Academies of Science, Engineering, and Medicine, that provided a series of recommendations for using population descriptors in future genetics and genomics studies.
Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… … Permanent Members Sara C. Hull, Ph.D. (IRB) NHGRI Bioethics Core Cristina Kapustij, M.S. Division of Genomics …
The Genomics Landscape
In the November 2019 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the International Common Disease Alliance's scientific plenary and launch meeting in September, which included an international panel on opportunities emerging outside the U.S., North America, and Europe; discussions about polygenic risk scores; and an overview about data platforms, data sharing, and ethics.
… and Future of ELSI Research” at the American Society of Bioethics and Humanities Annual Meeting on Oct. 25, 2019; …