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Staff
Dr. Donna Messersmith is a provider education specialist in the Education and Community Involvement Branch at the National Human Genome Research Institute.
… is a provider education specialist in the Education and Community Involvement Branch of the Division of Policy, … is a provider education specialist in the Education and Community Involvement Branch at the National Human Genome … is a provider education specialist in the Education and Community Involvement Branch at the National Human Genome …
Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials for sickle cell disease gene therapy.
… patients, parents of patients, health-professionals, community-based organizations, advocacy groups, industry … Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials … Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
…   Megan Lewis, Ph.D. Program Director, Patient & Family Engagement Research RTI International   … Past Seminars … The … and the social and behavioral sciences to speak to the NIH community. … National Institutes of Health Building 50, First … and the social and behavioral sciences to speak to the NIH community. … The purpose of this semi-annual lecture series …
Professional Development Programs
Provides exposure to the broader genomics community and experts in the field, with the opportunity to work on a genetics/genomics-related education projects under the mentorship of an ISCC-PEG member.
… Diversity and Health Equity Office;  Donna: Education and Community Involvement Branch National Human Genome Research … Muinat Oladayo, BDS, MPH Department of Preventive and Community Dentistry, College of Dentistry, University of … National Cancer Institute, Genetic Counselor Education and Community Involvement Branch/National Human Genome Research …
Human Genome Project
Video testimonials from prominent members of the genomics community commemorating and celebrating the 30th anniversary of the launch of the Human Genome Project.
… Human Genome Project. Prominent members of the genomics community have joined NHGRI in commemorating and celebrating … Video testimonials from prominent members of the genomics community commemorating and celebrating the 30th anniversary …
News Release
NHGRI researchers asked patients, parents and physicians in the sickle cell disease community (SCD) what they wanted and needed to know about genome editing to make informed decisions about participating in genome-editing clinical trials.
… work with patients, families and the scientific community to improve the informed consent process. … As … parents and physicians in the sickle cell disease community what they wanted and needed to know about genome … with respect to genome editing clinical trials, such engagement with patient communities may be replicated across …
Event
NHGRI is conducting three Zoom-based listening sessions to help gather information from the national medical genetics community regarding the current and future state of the medical geneticist workforce.
… gather information from the national genetics and genomics community regarding the current and future state of the … We will conduct these sessions to help us understand the community’s views regarding key challenges and potential … topic. We hope that members of the genetics and genomics community can attend at least one of the three sessions, …
News Release
NIH will fund grants totaling $38 million over five years to develop methods that will improve the way that polygenic risk scores can be used to predict disease in diverse communities.
… within the consortium and the biomedical research community by providing a shared analysis and computing … effort broadly available to the biomedical research community,” said Lucia Hindorff, Ph.D., program director in …
Event
As a way to engage with members of the public who want to know more about particular genomics topics, NHGRI director Eric Green, M.D., Ph.D. answers questions on Twitter using the hashtag #AskDrGenome and invites a special guest from NHGRI to join him.
Event
On March 1, 2018, over 65 basic research, clinical, and bioinformatic scientists in the genomics community convened for a four-hour web meeting on NHGRI-funded components of the Genome Reference Consortium (GRC).
… clinical, and bioinformatic scientists in the genomics community convened for a four-hour web meeting on … (GRC). The GRC is an essential resource for the biomedical community and due to recent technological advances, NHGRI … the reference relevant and useful clinical and research community needs (including education) related resources …