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The Genomics Landscape
In the July 7, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., emphasizes the importance of the Technology Transfer Office and its mission to manage all the legal negotiations that help to protect federally funded research from being unduly exploited, while also giving that research avenues to reach patients through the commercialization of promising advances.
Careers & Training
The Genomics and Public Service Fellowship Program continues post-graduate fellowship programs in public policy and education and engagement and adds two new programs – a post-graduate communications fellowship and a post-baccalaureate fellowship.
… program provides training and career development in public policy, education and engagement, science communications and … and anticipated career path. The Genetics and Public Policy Fellowship is for individuals interested in the … advance genetics and genomics research, literacy, public policy and workforce development. This fellowship is ideal …
News Release
NHGRI has appointed Dr. Jennifer Troyer as the incoming director as the incoming director of the Division of Extramural Operations (DEO) within NHGRI’s Extramural Research Program (ERP). She will provide leadership in coordinating the institute’s extramural research grants, operations and policies.
… who will be retiring in December after over 50 years in federal service. This will ensure a smooth transition of this …
News Release
NIH released a Request for Information seeking comments on the data submission and access process for dbGaP.
… Office of Science Policy … At the National Human Genome Research Institute, we … National Institutes of Health (NIH) Genomic Data Sharing Policy establishes a system to promote data sharing, while … . For more information on the NIH Genomic Data Sharing Policy, please visit NIH Genomic Data Sharing . We invite all …
Event
On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion exploring a constant tension at multiple levels in genomics research and medicine, from patient-provider interactions to research engagement with marginalized communities.
… is best for those individuals. On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel discussion … and Patient Autonomy … On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel … marginalized communities. … On March 15, 2021, NHGRI’s Policy and Program Analysis Branch hosted a panel …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… (NCI). While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is … for the Advancement of Science (AAAS) Science and Policy Fellow and as a Christine Mirzayan Science and Technology Policy Graduate Fellow. Currently, Dr. Lockhart focuses on …
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… while multiple tools exist for organizing and searching federal-level legislation, fewer resources are available for … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level … trends can be helpful for understanding the direction of federal legislation. By tracking how different states have …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… the NIH definition of metadata provided in the Final NIH Policy for Data Management and Sharing : Metadata  are “data … in accordance with the FAIR Principles. … The NIH GDS Policy  states that NIH-funded researchers generating genomic …  builds upon the expectation outlined in the NIH GDS Policy and emphasizes the importance of sharing comprehensive …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… privacy. … The Combined DNA Index System (CODIS) is the Federal Bureau of Investigation’s (FBI) program of support … suspect. Familial searching is not performed at the federal level, and the FBI does not regulate use at the state …  or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in …
Policy Issues
Synthetic biology is a field of science that involves redesigning organisms for useful purposes by engineering them to have new abilities.
… ?" section of this resource to learn about the federal regulations in place to regulate so-called " dual use … related to synthetic biology. The US government's Federal Select Agents Program  regulates the possession of … as laid out by the Dual Use Research of Concern (DURC) policy. For more information about the biosecurity policies …