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Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… understanding of the regulation in the genomics context. … Policy Issues …
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… GSR and how? … What are the options under the NIH GDS Policy for sharing GSR? … Can approved data users share GSR …
Policies and Guidance
​A site map listing all pages on genome.gov, the official website of the National Human Genome Research Institute.
Policy Issues
Genome editing is currently being applied to research on cancer, mental health, rare diseases, and many other disease areas.
… health, rare diseases, and many other disease areas. … Policy Issues …
Policy Issues
Scientists have edited genomes for many years, but CRISPR technology has improved the speed, cost, accuracy, and efficiency of genome editing ​
… cost, accuracy, and efficiency of genome editing ​ … Policy Issues …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… many organisms, including plants, bacteria, and animals. … Policy Issues …
About NHGRI
The Genomics and Society Working Group advises on planning and priorities for genomics and society activities at NHGRI.
… in light of changes in genomics, genomic medicine, and the policy landscape, aiming to identify emerging issues or gaps. … among the different Genomics and Society research and policy components of NHGRI (noting that formal oversight of … at the institute. ​ … Ethics Issues In Genomics, Policy Issues In Genomics, Legal Issues In Genomics, Genomics …
News Release
The National Human Genome Research Institute (NHGRI) has selected Valentina Di Francesco as the Institute’s first chief data science strategist and director of its new Office of Genomic Data Science. In this role, she will provide leadership, strategic guidance and coordination for NHGRI activities, programs and policies in genomic data science. NHGRI is part of the National Institutes of Health (NIH).
Policy Issues
El uso de seres humanos en las investigaciones biomédicas, clínicas y socioconductuales puede ofrecer entendimiento y descubrimientos que no pudieran obtenerse de ninguna otra manera.
… Todas las investigaciones financiadas por el gobierno federal en que se estudien seres humanos, tales como las … por o realizada en el NIH, está sujeta a la Política Federal para la Protección de Seres Humanos en Investigaciones ( Federal Policy for the Protection of Human Research Subjects ) o …
Policy Issues
Hay leyes y políticas que sirven para proteger la privacidad de la información genómica de un individuo.
… DNA Index System ), es el programa de apoyo de la Oficina Federal de Investigaciones ( Federal Bureau of Investigation , FBI) para las bases de … Protección de Seres Humanos en Investigaciones ( Federal Policy for the Protection of Human Subjects ), también …