Search Results
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and social-behavioral research can provide insights and discoveries that could not … to the Federal Policy for the Protection of Human Research Subjects, or 'Common Rule' ( Code of Federal Regulations, …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… aim to "modernize, simplify, and enhance" oversight for human subjects research in the United States to address changes in the …
For Patients and Families
Clinical research is research conducted with human subjects, or material of human origin, in which the researcher directly interacts with human subjects.
… Clinical research is research conducted with human subjects, or …
Clinical Research
The Institutional Review Board (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… Participating in genomics research is an opportunity to support scientific exploration … understand, prevent, detect and treat disease. … Human Subjects Research, Genetics Research, Clinical Trials, Data …
Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… When conducting clinical research studies, scientists may discover new health-related … of IRRs and IFs is relevant for a variety of fields of human health research. However, the volume of genomic data, … have chosen to participate in the studies. … Human Subjects Research, Genetics Research, Clinical Trials, Data …
Research at NHGRI
NHGRI researchers work with patients and families to understand of how genes influence disease and develop more effective diagnostics and treatments.
… of Health (NIH), clinical researchers at the National Human Genome Research Institute (NHGRI) are leading a new era in medicine … Variation, DNA Sequencing, Clinical Trials, Human Research Subjects … NHGRI researchers work with patients and families …
News Release
NHGRI published its “Strategic vision for improving human health at The Forefront of Genomics” in the journal Nature. This vision describes the most compelling research priorities and opportunities in human genomics for the coming decade, signaling a new era in genomics for the Institute and the field.
… … NHGRI's 2020 Strategic Vision describes opportunities in human genomics for improving human health. … The National Human Genome Research Institute (NHGRI), part of the National Institutes …
News Release
NHGRI researchers have produced the first end-to-end DNA sequence of a human chromosome. The results show that generating a precise, base-by-base sequence of a human chromosome is now possible, and will enable researchers to produce a complete sequence of the human genome.
… Ph.D. … This accomplishment opens a new era in genomics research. … Researchers at the National Human Genome Research Institute (NHGRI), part of the National … have produced the first end-to-end DNA sequence of a human chromosome. The results, published today in the journal …
Event
Opening remarks from Eric Green, Christopher Donohue and Michael Rembis.
… Irreducible Subjects: Disability and Genomics in the Past, Present and … 2022 … Hello, I’m Eric Green, Director of the National Human Genome Research Institute, one of the Institutes and Centers that …