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Clinical Research
The study collects genetic and medical information from people with GNE myopathy to understand the symptoms and clinical course of GNE myopathy.
… of Patients with GNE Myopathy collects genetic and medical information from people with GNE myopathy. Patients are … the symptoms and clinical course of GNE myopathy. This information is essential to prepare clinical treatment … GNE Myopathy. … This study collects genetic and medical information from people with GNE Myopathy and other …
Fact Sheet
Today, gene therapy for sickle cell disease is considered experimental and only available to you if you participate in a clinical trial.
… including pain crisis. … Step 6: Manufacturing and processing   Your collected stem cells will be taken to a …
Policies and Guidance
NHGRI does not collect personally identifiable information about you on genome.gov unless you volunteer to provide it.
… does not disclose, give, sell, or transfer any personal information about visitors to its websites, unless required … protecting your privacy. We will not collect any personal information about you when you visit our website (other than the standard information automatically collected and stored in the Web …
15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… Advances in genomics are helping you access information about your genome from your home. … Did you know … read specific places in their DNA and provide them with information about their genome? Advances in genomics since … to consumer" genomic testing. You can even seek genomic information without involving a healthcare provider in …
News Release
On March 16, Rep. Louise M. Slaughter (D-N.Y.), lead author of the Genetic Information Nondiscrimination Act of 2008 (GINA), passed away at the age of 88.
… Louise M. Slaughter (D-N.Y.), lead author of the Genetic Information Nondiscrimination Act of 2008 (GINA), passed away … Louise M. Slaughter (D-N.Y.), lead author of the Genetic Information Nondiscrimination Act of 2008 (GINA), passed away at the age of 88. ​ … Genetic Information Nondiscrimination Act of 2008, National DNA Day, …
Educational Resources
Apoptosis is the process of programmed cell death.
Educational Resources
Gene regulation is the process of turning genes on and off.
Staff
Dr. Keith McKenney is a scientific review officer at the National Human Genome Research Institute (NHGRI).
Event
On December 11, 2023, NHGRI, in collaboration with several other NIH Institutes and Offices, recently renewed the three Notices of Funding Opportunity (NOFOs) used to support investigator-initiated research on the ethical, legal and social implications (ELSI) of human genome research.
The Genomics Landscape
In the December 3, 2020 edition of The Genomics Landscape, Dr. Eric Green spotlights on ELSIhub.
… beyond. The platform includes a wealth of ELSI research information. Key features include ELSI literature resources, an ELSI scholar directory, information on ELSI-relevant funding opportunities, and an … more broadly available. The policy includes supplemental information on data management and sharing costs and data …