Search Results
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… to treat Layla, and instead used another genome editing technology called TALENs. Doctors tried many treatments … technologies are critical steps to ensure that this technology is ready for use in patients. Ethical concerns … and animals. ​ … CRISPR, CRISPR-Cas9, Genome Editing Technology, Genome Editing, Genomic Technology, Gene Editing, …
For Patients and Families
The partnership engages communities on genomics, informs and shares perspectives, and impacts the focus of research.
… and guidance on the development of programs, tools, and information for various communities. Providing community …
Talking Glossary
Precision medicine (generally considered analogous to personalized medicine or individualized medicine) is an innovative approach that uses information about an individual’s genomic, environmental and lifestyle information to guide decisions related to their medical management.
… medicine) is an innovative approach that uses information about an individual’s genomic, environmental and lifestyle information to guide decisions related to their medical … medicine) is an innovative approach that uses information about an individual’s genomic, environmental and …
For Health Professionals
ISCC-PEG working groups that are no longer active. Information is kept for historical purposes.
… following ISCC-PEG working groups are no longer active. Information about these groups are retained solely for … … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. … ISCC-PEG working groups that are no longer active. Information is kept for historical purposes. … For Health …
Clinical Research
A study to learn more about the role of viral infection and biomarkers of immunity in mitochondrial disease, utilizing new technology with Neoteryxâ„¢ fingerstick at-home sampling.
… biomarkers of immunity in mitochondrial disease using new technology with Neoteryx ™ fingerstick at-home sampling. … … Privacy and confidentiality are very important to us. All information shared with us will be coded. We will not return … of immunity in mitochondrial disease, utilizing new technology with Neoteryx™ fingerstick at-home sampling. … A …
Your Genome
Information about the relationship between genomics and health for patients, families and health professionals.
… and your family. Our resources will help you find detailed information about genetic disorders, the new science of … providing health professionals with reliable, up-to-date information on the rapidly expanding field of genomics.  … … … Polygenic risk scores … Family Health History … Health … Information about the relationship between genomics and …
eMERGE
Important information about RFAs, upcoming dates, frequently asked questions and helpful links.
… Important information about RFAs, upcoming dates, frequently asked … from prospective applicants are provided below. … What information can be used to formulate a genomic risk … Network. Why is FDA approval required for the genotyping technology? The FDA approval is required due to the clinical …
Staff
Dr. Dave Kaufman is a program director Division of Genomics and Society​ at the National Human Genome Research Institute.
… to Genomic Healthcare and the integration of genomic information and technologies into clinical care. He also … issues. Visit the ELSI Research Areas  webpage for more information on areas of ELSI research. … Biography … Related … policy, ethical legal and social implications, genomic information, citizen science … Dave Kaufman, return of …
Educational Resources
A family history is a record of medical information about an individual and their biological family.
… Family History … A family history is a record of medical information about an individual and their biological family. … individuals. … A family history is a record of medical information about an individual and their biological family. …
News and Events
A collection of institute resources, background information, and points of contact for members of the press.
… … A collection of institute resources, background information, and points of contact for members of the press. … A collection of institute resources, background information, and points of contact for members of the press. …