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News Release
Fearful patients who received information about the role of genomics in obesity were less likely to take steps to improve health habits
News Release
NIH will support research that incorporates DNA sequence information into electronic medical records.
Administrative
The Information Technology Branch provides leadership and service for information technology resources at NHGRI.
News Release
Four NIH grants will support research on the ethical, legal and social questions raised by genomics research advances and genomic information.
For Patients and Families
The Genetic and Rare Diseases Information Center helps people find useful information about genetic and rare diseases.
Educational Resources
Ancestry-informative markers are sets of polymorphisms for a DNA sequence found in different frequencies between populations from different geographical regions.
About NHGRI
Information about how the NHGRI receives its funding and decides how to spend its annual budget.
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… disclosing genetic information without an individual's consent. It is notable that this first version of the bill …
AnVIL
The Data Use Oversight System (DUOS) is a semi-automated study registration and DAR management service informed by the GA4GH DUO standard, which enables the secondary use of human genomics and other controlled-access data in compliance with the informed consent of a study’s participants.
… access) are used in a manner that is consistent with the informed consent of the study’s participants. The growing demand for … study registration and DAR management service informed by the GA4GH DUO standard , which enables the …
Secondary Genomics Findings Service
Responsibilities as a PI, consent, type of data accepted, and how to apply
… Provide staff who are adequately trained to perform the informed consent for secondary findings and who can enter CRIS orders. … some suggested language to incorporate into protocols and consent forms. As with all parts of your consent form, it is …