Search Results
News Release
An online Informed Consent Resource created in 2009 by NHGRI has been updated to keep pace with advances in genomics over the past several years
… return of results, research involving children, and privacy and confidentiality. It also includes examples and …
The Genomics Landscape
In the July 7, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., emphasizes the importance of the Technology Transfer Office and its mission to manage all the legal negotiations that help to protect federally funded research from being unduly exploited, while also giving that research avenues to reach patients through the commercialization of promising advances.
… type 2 diabetes, epigenomics, aging, cancer, data privacy, and others.  The ClinSeq Project is a genomic …
Clinical Research
This study explores how microbes, such as bacteria and fungi, contribute to a very common skin condition called Atopic Dermatitis, known as eczema.
… in joining this study are very minor or very rare. Privacy issues: The study team will use codes for your …
News Release
The Social Genomics Project aims to understand what people around the world think about the intersections between genomics, genetics and society.
… public could voice their concerns about the study, and the privacy of survey takers was checked and double-checked. SBRB …
Research Funding
The E​MERGE Network develops, disseminates and applies approaches to research that combine biorepositories with electronic medical record systems.​
… sIRB protocol development ELSI for returning PRS, IRB, privacy, etc. … The Electronic Medical Records and Genomics …
Policy Issues
In 2008, the Genetic Information Nondiscrimination Act was passed into law, prohibiting discrimination by employers and health insurers.
… Portability and Accountability Act (HIPAA), which lays out privacy requirements for health information. The modification …
News Release
Diverse populations are still underrepresented in public genomic databases, according to a new study by researchers from the NIH and Harvard Medical School.
… researchers while maintaining research participants' privacy. The researchers categorized studies by ancestral …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
The Genomics Landscape
In the November 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the 25th anniversary of NHGRI's Intramural Research Program.
… to GSR information in a way that is proportional to the privacy risk posed by sharing this information (relative to … recognizes that some study populations may have different privacy risks (e.g., those from isolated geographic regions …
The Genomics Landscape
In the March 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights a strategic planning effort to establish a 2020 vision for genomics.
… Covers a Range of Topics, from the Opioid Crisis to DNA Privacy Issues NIH Researchers Highlight Virtual Reality …