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15 Ways Genomics Influences Our World
Advances in genomics are helping you access information about your genome from your home.
… - DNA Family Stories Smarter Every Day - DNA Testing and Privacy (Behind the Scenes at the 23andMe Lab) NPR's Code …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… Investigators are not expected to share data if 1) the privacy or safety of research participants would be … adequate protection of research participants, maintain privacy, and mitigate risk. NHGRI recognizes that methods for … the scope or extent of sharing and future research use privacy or safety of research participants would be …
FAQ
On July 20, 2023, the National Human Genome Research Institute (NHGRI) hosted a pre-application webinar for the Human Genome Reference Program (HGRP) Informatics Tools for the Pangenome Notice of Funding Opportunity (NOFO): RFA-HG-23-026. We collected the questions and answers from the webinar to help applicants.
… partners, which may raise data sovereignty and privacy challenges. One example of a potential application is …
Funding Opportunities
Funding Opportunities for Investigator-Initiated Research in Computational Genomics and Data Science
The Computational Genomics and Data Science Program Announcements (PARs) invite applications for investigator-initiated research efforts fostering innovation in computational genomics, data science, statistics, bioinformatics, and data visualization and exploration.
… quantify genomic information leakage and file formats for privacy preservation HG010749 LI, WEI CHILDREN'S RESEARCH … WANG, XIAOFENG TRUSTEES OF INDIANA UNIVERSITY Secure and Privacy-preserving Genome-wide and Phenome-wide Association …
National Advisory Council for Human Genome Research
The Director's Report-Related Documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in February 2023.
… DUOS Website Broad Institute DUOS Website 36 iDASH Genomic Privacy Challenge 2022 iDASH Challenge Website Harmanci et … Provides Secure Imputation Services with Provable Genomic Privacy" UK-US PETS Prize Challenge 37 Clinical Sequencing …
News Release
Scientists are exploring the genomic and clinical profiles of people with RUNX1 familial platelet disorder.
… and was diagnosed with RUNX1-FPD.  *last name omitted for privacy … Although researchers have known for more than 20 …
National Advisory Council for Human Genome Research
The Director's Report Related documents contain links to materials supplemental to Dr. Eric Green's Director's Report presentation to the National Advisory Council for Human Genome Research in February 2019.
… Gene Ontology Consortium Website 28 5 th iDASH Genomic Privacy Challenge 29 Ethical, Legal, and Social Implications … Hazel - Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic …
FAQ
Frequently asked questions on the webinar for the Diversity Centers for Genome Research funding opportunity announcements (FOAs): (RFA-HG-22-026 and RFA-HG-22-027.
… for data access, protection of participant and patient privacy and confidentiality, and management of health …
The Genomics Landscape
In the May 2018 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the Human Genome Project receiving the 2017 Prince Mahidol Award.
… 500 questions, covering topics such as genome editing, privacy protections for participants of the All of Us …
The Genomics Landscape
In the January 2020 edition of The Genomics Landscape, NHGRI Director Eric Green highlights the newly developed polygenic risk scores webpage, which provides graphical and textual information about polygenic risk scores, describes polygenic traits, introduces how polygenic risk scores can be calculated, and explains how such scores can be interpreted.
… and creating spaces for difficult conversations about privacy, racism, ethics, and identity. The second session, …