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News Release
20 papers published online in 2014 highlight research on DNA biorepositories and electronic medical records to better understand the genomics of disease.
News Release
Diverse populations are still underrepresented in public genomic databases, according to a new study by researchers from the NIH and Harvard Medical School.
… but diverse populations are still underrepresented in public genomic databases, according to a new study by … populations compared to European populations in two public databases, the Genome-Wide Association Study Catalog … Sprague Norman and Laura Smart Norman Professor of Public Health at the Harvard T.H. Chan School of Public …
Media Availability
National DNA Day events give the public a chance to ask questions about genetics and genomics.
… Chat , which will give students, teachers and the general public an opportunity to ask questions about genetics and … - a Reddit "Ask Me Anything" and aTwitter Chat - give the public a chance to ask questions about genetics and genomics. … AMA, genomic literacy … National DNA Day events give the public a chance to ask questions about genetics and genomics. …
Event
November is Family Health History Awareness Month! To celebrate, the National Human Genome Research Institute will host several engagement events over social media on Wednesday, November 17.
… National Human Genome Research Institute will host several engagement events over social media on Wednesday, November … National Human Genome Research Institute will host several engagement events over social media on Wednesday, November … National Human Genome Research Institute will host several engagement events over social media on Wednesday, November …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… Communication and Public Liaison Branch … Today, the National Institutes of … a notice in its Guide to Grants and Contracts seeking public comment on a proposed update to the data management of … summary results from most studies to be provided via a public, rapid-access model. … NIH is seeking public feedback …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… in 2003 all of the human gene sequences were in the public domain and, therefore, prior art. Finally, many argued … DNA sequence generated should be freely available to the public. This principle was codified in the 1997 Bermuda … Research: Intellectual Property Rights, Innovation, and Public Health . NHGRI worked extensively with the NIH Office …
Research at NHGRI
The Democratizing Education for Sickle Cell Disease Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials for sickle cell disease gene therapy.
… Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials … Gene Therapy project utilizes a deliberative stakeholder-engagement approach to develop patient educational materials …
Professional Development Programs
The JHU/NHGRI Genetic Counseling Training Program prepares students for a M.S in Genetic Counseling from Johns Hopkins Bloomberg School of Public Health.
… Behavior and Society, Johns Hopkins Bloomberg School of Public Health. … This two and one-half year Accreditation … (Ph.D.) program in the Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society. … can be found at: Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society: …
Outreach
Frequently asked questions about National DNA Day - a unique day when students, teachers, and the public can learn more about genetics and genomics.
… This annual celebration offers students, teachers and the public many exciting opportunities to learn about the latest … DNA Day - a unique day when students, teachers, and the public can learn more about genetics and genomics. … … DNA Day - a unique day when students, teachers, and the public can learn more about genetics and genomics. … Outreach …
The Genomics Landscape
In the March 3, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., highlights the new fact sheets produced by the institute's Communications and Public Liaison Branch.
… Thank you, Francis! Recently, the NHGRI Communications and Public Liaison Branch developed a more user-friendly “ … to advance health equity. This event is open to the public, but registration is required. The agenda and … appointed two new Program Directors and a Partnerships and Engagement Officer. Lucia Hindorff , Ph.D., M.P.H., will …