Search Results

21 - 30 of 887
Professional Development Programs
The Genetics and Public Policy Fellowship is designed for individuals interested in the development and implementation of genetics-related health and research policies at a national level.
… to improve health are deeply influenced by important policy decisions at the national level. From guiding research agendas to informing the integration of genetics and genomics in clinical settings, sound … enhance and accelerate equitable access to the benefits of genomics research. These policies are better informed with …
Research Funding
Policies and guidance regarding research funding from the NHGRI and the National Institutes of Health.
… The National Institutes of Health (NIH) Grants Policy Statement is the definitive resource for grants … and the general public for responsible stewardship of federal research dollars. Sound management of research …
Administrative
NHGRI branch responsible for policy development and analysis related to advances in genomics research.
… The Policy and Program Analysis Branch (PPAB) of the Division of Genomics and Society conducts policy development and …
About Genomics
NHGRI considers the ethical, legal and social aspect of genomics research in our work, including these key policy issues
… NHGRI is committed to driving the responsible use of genomics in society in order to advance knowledge and ensure that genomics benefits the health of all humans. To do this, we consider the ethical, legal, … our work, including these key issues. … Related Content … Policy Issues in Genomics … NHGRI considers the ethical, …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… The final version of the Common Rule was published in the Federal Register on … will share in the profit. A statement about whether results will be disclosed to participants. A statement to … Human Rights, Federal Laws Protecting Research Subjects, Return Of Research Results, Common Rule … Revisions to the …
FAQ
Frequently asked questions from the May 23, 2023 informational webinar, ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… data? NHGRI recognizes that methods for de-identification of qualitative data are developing, and existing tools may …   Guidance on de-identification from the Department of Health and Human Services NIST’s tools for … define genomic data as an identifier. However, NIH has policy protections in place to mitigate the risk of
Event
On May 23, 2023, NHGRI will host a webinar: ELSI Research and the New NIH Data Management and Sharing (DMS) Policy.
… The webinar will focus on the following topics: Overview of the NIH Data Sharing Management Policy Application of the DMS Policy to ELSI Research Data sharing templates and …
Policies and Guidance
A webpage with information and associated FAQs that describe various expectations for data sharing that are specific to NHGRI-supported studies.
… follows the NIH’s expectation for submission and release of scientific data, with the following exception: for genomic … non-human genomic data that are subject to the NIH GDS Policy to be submitted and released on the same timeline as … clinical trials are expected to register and submit results to  Clinicaltrials.gov . Sharing summary data via  …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… consent language should avoid restrictions on the types of users who may access the data. NHGRI acknowledges that … primary study, if consistent with study design. When the policy applies NHGRI encourages sharing of all data types. … Researchers: Providing Access to Genomic Summary Results November 1, 2019   NIH seeks comment on proposal to …
Policies and Guidance
For FY2023, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Vision for Improving Human Health at the Forefront of Genomics ” in Nature . The development of this vision … of Award issued in FY2022 as described in the FY23 Fiscal Policy . Small Business Innovation Research (SBIR) and Small … funded or conducted in whole or in part by NIH that results in the generation of scientific data must submit a …