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Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Vision for Improving Human Health at the Forefront of Genomics" in Nature . The development of this vision involved participation by many scientists in … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For most of FY20, NHGRI’s extramural program will be operating under the 2011 National Human Genome Research Institute (NHGRI) strategic plan.
… The NHGRI is currently in the process of developing a new strategic plan which will be published in … and career - are being sought. NHGRI’s development of a strategic plan involves participation by many scientists … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
For FY22, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… Vision for Improving Human Health at the Forefront of Genomics” in Nature . The development of this vision involved participation by many scientists in … To facilitate the implementation of this NIH-wide policy, NHGRI is very flexible in the support of early stage …
Policies and Guidance
Frequently Asked Questions regarding the Update to NIH Management of Genomic Summary Results Access.
… Asked Questions regarding the Update to NIH Management of Genomic Summary Results (GSR) Access. … Genomic summary results (GSR) are the … GSR and how? … What are the options under the NIH GDS Policy for sharing GSR? … Can approved data users share GSR …
Clinical Research
The Protocol Service Center provides assistance in the development and administration of study protocols requiring NIH Institutional Review Board approval.
… and staff in the development and administration of study protocols that require NIH Institutional Review … Research Participants, Clinical Trials, Genetic Disorders, Return Of Results, Genetic Discrimination … The Protocol Service Center …
Clinical Research
The Institutional Review Board (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are conducted by intramural investigators in NHGRI and a number of other institutes.
… (IRB) is responsible for protecting the rights and welfare of the human subjects of research protocols that are … Research Participants, Clinical Trials, Genetic Disorders, Return Of Results, Genetic Discrimination … The Institutional Review …
Policy Issues
There are laws and policies that serve to protect the privacy of individuals' genomic information.
… on the specific laws and policies that protect the privacy of genetic and genomic information. In the United States, the … of the research participants (see Genomic Data Sharing Policy below). In addition, NIH issues Certificates of … the test, what the test attempts to determine, how the results will be used and in what state the testing takes …
Talking Glossary
Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs.
… racism. Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs. … racism. Scientific racism is a historical pattern of ideologies that generate pseudo-scientific racist beliefs. … in the 19th and early 20th centuries were proponents of such ideologies. By the mid-20th century, …
About Genomics
In 2003, an accurate and complete human genome sequence was finished two years ahead of schedule and at a cost less than the original estimated budget.
… available to scientists and researchers two years ahead of the original Human Genome Project schedule and at a cost … in the human genome is considered by many to be one of the most ambitious scientific undertakings of all time, … … Lessons Beyond the Base Pairs … Human Genome Project Results … In 2003, an accurate and complete human genome …
The Genomics Landscape
In the December 2, 2021 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., spotlights the re-opening of the Genome: Unlocking Life’s Code exhibition at the Smithsonian’s National Museum of Natural History (NMNH) in Washington, D.C.
… a two-day virtual NHGRI symposium entitled “The Meaning of Eugenics: Historical and Present-Day Discussions of … for genomics research with the public. Along with the return of the exhibition to Washington, D.C., the Genome: … for the White House Office of Science and Technology Policy . The lecture is open to the public, but registration …