Search Results
The Genomics Landscape
In the February 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Genome Statute and Legislation Database, which recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level legislation related to genomics.
… As February begins, many of us at NHGRI are working hard in preparation for the … recently received a major revamp to help researchers, policy analysts, and the public more easily find state-level … and the use of genetics in law enforcement. The search results provide a quick summary along with the current …
Policy Issues
Federally-funded research with human participants must comply with regulations that protect the rights and welfare of the participants.
… The use of human participants in biomedical, clinical and … funded by or carried out at NIH, is subject to the Federal Policy for the Protection of Human Research Subjects, or … a disease or will be affected themselves. These indirect results can pose an ethical conflict between a possible duty …
Policy Issues
The 9 steps a bill can go through before becoming a law, using the Genetic Information Non-Discrimination Act of 2003 as an example.
… a bill can go through before becoming a law. The history of the Genetic Information Nondiscrimination Act  (GINA), a law that was passed in 2008 and impacts the field of genomics, provides an excellent example of the legislative … Non-Discrimination Act of 2003 as an example. … Policy Issues …
Staff
Joy Boyer was a program director in NHGRI's Division of Genomics and Society.
… since 1996. As a program director in the NHGRI Division of Genomics and Society, Joy oversees a portfolio of research, training and career development grants related … Genomics and Society. … Joy Boyer, societal issues, social policy, ethical legal and social implications, newborn …
Policy Issues
In June 2013, the Supreme Court determined that DNA in its natural form cannot be patented.
… were issued in 1982, following the U.S. Supreme Court case of Diamond vs. Chakrabarty, which opened the door to … patenting biotechnology discoveries. Since then, the core of the debate over gene patents has been whether or not the … databases within 24 hours of being generated. This policy of open access to the genome has been a core ethos of …
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… is an opportunity to support scientific exploration of the genome and to help NIH in its mission to understand, … you or your family members. For example, genomic testing results could tell you information about disease risk, … understand, prevent, detect and treat disease. … Policy Issues …
News Release
John Ohab, Ph.D., a neuroscientist and science communicator, has been named chief NHGRI's Communications and Public Liaison Branch.
… and science communicator, has been named chief of the Communications and Public Liaison Branch (CPLB) at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH). In this role, he … goals and policies. … CPLB is part of the Division of Policy, Communications, and Education (DPCE), whose mission …
Policies and Guidance
NHGRI is committed to maintaining a work environment that is courteous, respectful, and free from harassing behaviors for its employees, contractors, volunteers, interns and visitors.Â
… on (301) 402-4845 File an EEO complaint through the Office of Equity, Diversity, and Inclusion at … or fellow. … NHGRI Anti-Harassment Plan NIH Climate Survey Results - November 2019 General Facts of the Survey for NHGRI … Workforce Diversity October 23, 2019 NIH Anti-Harassment Policy and Videos Anti-Harassment Q&A … Too Many Seniors …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… information to exonerate those who have been convicted of crimes they did not commit. This page provides information … sample can then be taken from the suspect. The results of a comparison between that sample and the crime …  or the practice of IGG. The Department of Justice Interim Policy on investigative genetic genealogy went into effect in …
Policy Issues
Payers such as insurance companies and Medicare need systematic ways of evaluating genetic tests for reimbursement.
… For patients to have full access to the benefits of genetic testing, payers such as insurance companies and … of genetic testing. There are several reports created by policy and scientific experts seeking to advise Federal … testing may be concerned about the privacy of their results and whether insurance companies could use a genetic …