Search Results
Research Funding
The IGNITE PTN supports a network of multi-site clinical groups involving diverse settings and populations to conduct two pragmatic clinical trials of genomic medicine interventions.
… The Implementing Genomic in Practice (IGNITE) Network was established in 2013 ( RFA-HG-12-006 , … in diverse clinical settings. The first phase of the network, IGNITE I , was a consortium of collaborative … GUARDD-US and ADOPT-PGx protocol development and trial data are reviewed by the independent, NHGRI-convened DSMB. …
News Release
eMERGE Network will support multiple clinical sites and a coordinating center with $75 million over five years.
… Prabarna Ganguly, Ph.D. … eMERGE Network will support multiple clinical sites and a … Genomics (eMERGE) Genomic Risk Assessment and Management Network, which establish protocols and methodologies for … as age, body-mass index, alcohol use and other clinical data, all of which can affect an individual’s risk for …
Fact Sheets
Data used to estimate the cost of sequencing the human genome over time since the Human Genome Project.
… Program. Here, NHGRI provides an analysis of these data, which gives one view of the remarkable improvements in DNA sequencing technologies and data-production pipelines in recent years. … The cost-accounting data presented here are summarized relative to two metrics: …
Policies and Guidance
Frequently Asked Questions regarding the NHGRI's Metadata and Phenotypic Data Sharing Expectations.
… Frequently Asked Questions Data sharing is an important aspect of the research endeavor that ensures maximal use of participants’ data for scientific discovery, rigor and reproducibility, and more. NHGRI-funded researchers subject to NIH’s data sharing policies are expected to share comprehensive …
Event
The Encyclopedia of DNA Elements (ENCODE) Consortium presented a half-day workshop on the accessibility & utilization of ENCODE data.
… workshop on the accessibility & utilization of ENCODE data. The workshop included an introduction to the ENCODE project and resources available to access ENCODE data, as well as specific research applications using ENCODE data. Additionally, there was designated time for attendees …
The Genomics Landscape
In 2022, The Genomics Landscape spotlighted genomic data sharing each month in a series of entries. This page contains a collection of each of those entries.
… Landscape Originally published: January 13, 2022 Data sharing is central to the field of genomics. Both human and non-human genomic data have been widely shared through public data resources, … the Electronic Medical Records and Genomics (eMERGE) Network has been involved in expanding the capabilities of …
Event
On January 25, 2023, the National Human Genome Research Institute will hold a roundtable on social and behavioral genomics.
… - 1:40 p.m. — Moderated Discussion: Genetics in postwar social and behavioral research Moderator: Nayanika Ghosh, … project paused amid backlash by Katharine Sanderson Social and behavioral science at the forefront of genomics: … to the misuse and misappropriation of scientific data. The news media has also called these avenues of inquiry …
News Release
NIH awards more than $64 million to for a database of human cellular responses called the Library of Integrated Network-based Cellular Signatures or LINCS.
… of human cellular responses, the Library of Integrated Network-based Cellular Signatures (LINCS). Discovering such … funding establishes six centers, collectively called the Data and Signature Generating Centers. The National Human … human cellular responses called the Library of Integrated Network-based Cellular Signatures or LINCS. … Human …
Events
Data sharing has been a central tenet of the field of genomics since the Human Genome Project.
… Presentation Slides … Data sharing has been a central tenet of the field of … Genome Project. While many recognize that sharing genomic data is critical to scientific progress, considerable privacy … and other concerns have been raised over sharing genomic data too broadly and openly. It is immensely challenging for …
Event
The purpose of this semi-annual lecture series is to bring distinguished researchers whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community.
… The Social and Behavioral Research Branch (SBRB) Seminar … whose work sits at the interaction of genomics and the social and behavioral sciences to speak to the NIH community. … 50, First Floor Conference Room (Room 1227/1233) … Social and Behavioral Research Branch Seminar Series … The …