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Data Sharing
The NHGRI Data Sharing Governance Committee is responsible for the activities necessary for the Institute to implement and maintain NIH and NHGRI data sharing policies.
… The NHGRI Data Sharing Governance Committee is responsible for the … for the Institute to implement and maintain NIH and NHGRI data sharing policies. These activities include:  Promoting standard data sharing practices and operating procedures across NHGRI. …
Policies and Guidance
Broad data sharing promotes maximum public benefit from federally funded genomics research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. These repositories may be open access (unrestricted) or, if more appropriate, controlled access.
… Broad data sharing promotes maximum public benefit from federally … research. NHGRI supports the broadest appropriate genomic data sharing with timely data release through widely accessible data repositories. …
Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.​
… M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … research focuses on developing and applying social network methods to the study of complex social systems, such … the group aims to address the incomplete social network data common to the study of family systems or community-based …
News Release
The Undiagnosed Diseases Network has opened an online patient application portal called the UDN Gateway.
… Steven Benowitz … The Undiagnosed Diseases Network (UDN), a clinical research initiative of the National … of this application system sets the stage for the network to advance its core mission: to diagnose patients who … rather than through individual clinical sites in the network. The Gateway replaces what had previously been a …
About NHGRI
The Genomic Data Science Working Group facilitates engagement of the National Advisory Council for Human Genome Research on genomics and data science issues.
… The NHGRI Genomic Data Science Working Group facilitates a deeper engagement of … on complex issues at the interface between genomics and data science. … The NHGRI Genomic Data Science Working Group was created in 2017 as a …
News Release
How well cancer patients fare after chemotherapy can be affected by their social interaction with other patients during treatment.
… patients fare after chemotherapy can be affected by their social interaction with other patients during treatment, … were published online July 12, 2017, in the journal Network Science . "People model behavior based on what's … their findings on 2000 to 2009 electronic medical records data from two major hospitals in the United Kingdom's …
News Release
Researchers and clinicians are sequencing human genomes faster than ever, so considering the societal implications of genomic data is even crucial.
… for all individuals and populations.The Ethical, Legal and Social Implications (ELSI) Research Program at the National … we started generating massive amounts of human genomic data, there'd be lots of societal factors to consider. Now, … … Related Content … Reddit AMA: Ethical, legal and social implications of genomics research … Researchers and …
News Release
The Social Genomics Project aims to understand what people around the world think about the intersections between genomics, genetics and society.
… Research Institute (NHGRI) are harnessing the power of social media and mobile phones to connect with research participants. … The Social Genomics Project, conducted by NHGRI's Social and Behavioral Research Branch (SBRB), aims to …
News Release
Baylor College of Medicine. Houston and the Medical College of Wisconsin, Milwaukee will be providing DNA sequencing for the Undiagnosed Diseases Network.
… be providing DNA sequencing for the Undiagnosed Diseases Network (UDN). Each site will receive more than $2.5 million … The facility will provide CLIA-certified genome sequence data for UDN patients and their family members in partnership … to conduct DNA sequencing for Undiagnosed Diseases Network … Baylor College of Medicine. Houston and the Medical …
News Release
Laura Koehly, Ph.D., has been named chief of NHGRI's Social and Behavioral Research Branch.
… Mjoseth … Laura Koehly, Ph.D., has been named chief of the Social and Behavioral Research Branch (SBRB) in the … Laura Koehly, Ph.D., newly appointed chief of NHGRI's Social and Behavioral Research Branch. Credit: Ernesto Del … "Jill was working on a protocol to address a social network problem, which was my area of expertise," Dr. Koehly …