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Staff
Dr. Laura Koehly is the chief of and senior investigator in the Social and Behavioral Research Branch at the National Human Genome Research Institute.​
… M. Koehly, Ph.D., is chief and senior investigator in the Social and Behavioral Research Branch, National Human Genome … research focuses on developing and applying social network methods to the study of complex social systems, such … the group aims to address the incomplete social network data common to the study of family systems or community-based …
eMERGE
Important information about RFAs, upcoming dates, frequently asked questions and helpful links.
… for the eMERGE Genomic Risk Assessment and Management Network funding opportunities. Frequently asked questions … the variants are not present. Do I have to use eMERGE data in preparing my application? No, any dataset can be used … is envisioned for the small two-year ethical, legal, and social implications (ELSI) research study? The ELSI study …
News Release
Researchers and clinicians are sequencing human genomes faster than ever, so considering the societal implications of genomic data is even crucial.
… for all individuals and populations.The Ethical, Legal and Social Implications (ELSI) Research Program at the National … we started generating massive amounts of human genomic data, there'd be lots of societal factors to consider. Now, … … Related Content … Reddit AMA: Ethical, legal and social implications of genomics research … Researchers and …
Research Funding
​The Undiagnosed Diseases Network accelerates discovery and innovation in how we diagnose and treat patients with previously undiagnosed diseases.
… sharing standardized, high-quality clinical and laboratory data including genotyping, phenotyping, and documentation of … successes of the UDP, NIH extended the program into a network of seven clinical sites. These clinical sites … . … Overview … News and Events … Social Media … Program Staff … Accelerating discovery and …
15 Ways Genomics Influences Our World
Genomics is fostering an appreciation for what our DNA means for our health, identities and culture.
… anyone's genome sequence raises many issues regarding the social context of genomics. Information about our genomes is … your society? Continued studies of the ethical, legal, and social implications of genomic advances can help to break … involving humans. The widespread availability of genomic data has brought changes to privacy considerations as well. …
Archive
… Future Directions for the eMERGE Network … Archive …
News and Events
Discover the secrets hidden in your genome through illustrations, videos, engaging stories, and the latest science that impacts your life.
… On Facebook, Twitter and other social media channels, the National Human Genome Research … and enhance support for its mission.  … The following social media channels are maintained by NHGRI's Office of … interest you and join the conversation! … The following social media channels are maintained by either staff in the …
Talking Glossary
Data science involves the study of large, complex data sets that arise from various types of research projects.
Data Science … Data science involves the study of large, complex data sets that arise from various types of research projects. … Data science involves the study of large, complex data sets …
News Release
In honor of Rare Disease Day, experts from the UDN turned to Reddit to answer questions during an "Ask me Anything."
… rare diseases, experts from the UDN turned to Reddit - a social news website and discussion forum - to answer … and research experts from the Undiagnosed Diseases Network (UDN) have joined forces to solve the most … rare diseases, experts from the UDN turned to Reddit - a social news website and discussion forum - to answer …
Archive
… Genomics and Randomized Trials Network (GARNET) … Archive …