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News Release
NIH will hold a Reddit "Ask Me Anything" with members of its NHGRI Ethical, Legal and Social Implications Research Program.
… Anything" (AMA) with members of the National Human Genome Research Institute's (NHGRI) Ethical, Legal and Social … Implications Research Program, a part of the Division of Genomics and Society. … Impact on Society Members of the … with diverse communities to ensure that the benefits of genomics are available fairly across our society? What are …
The Genomics Landscape
In the June 2018 issue of The Genomics Landscape, NHGRI Director Eric Green highlights the success of The Cancer Genome Atlas.
… are available on the ' Establishing a 2020 Vision for Genomics ' website. NHGRI will host a Town Hall at the … and accomplishments from the institute and the field of genomics.   …   After more than a decade, The Cancer Genome … 15, 2018 and can be submitted  here . …   The  All of Us  Research Program, a historic effort to gather data from one …
The Informed Consent Resource
Explore genomics-relevant considerations for informed consent and guidance on how to approach them.
… This webpage discusses genomics-relevant considerations for informed consent and … about the risks and benefits of participating in a research project. … The informed consent process and consent … of the investigation, and whether the study team will be responsible for providing updates to participants regarding …
Research at NHGRI
The Social and Behavioral Research Branch conducts research to apply genomic discoveries to improve health and clinical care.
… The Social and Behavioral Research Branch (SBRB) aims to develop optimal approaches for … families. We conduct research at the intersection of genomics and the social and behavioral sciences and train the … of genomic discovery We approach research with a social genomics lens. We study a diverse group of disorders and seek …
Diversity Center
The University of Texas Rio Grande Valley (UTRGV) has established a Diversity Center for Genome Research that will build UTRGV’s genomics research capacity by 1) expanding genomic research capabilities and discoveries in two innovative research projects; and 2) enhancing the size and quality of the available genomics workforce.
… (UTRGV) has established a Diversity Center for Genome Research that will build UTRGV’s genomics research capacity by 1) expanding genomic research … and 2) enhancing the size and quality of the available genomics workforce.  … Build research capacity by expanding …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research. ​
… interest in ethics and genetics to share the latest ELSI research. This year's theme is “Reimagining the Benefits of … and social issues related to advances in genetics and genomics.   … Since its creation in 1990, the ELSI Research … Research Report of the First Community Consultation on the Responsible Collection and Use of Samples for Genetic …
Research at NHGRI
NHGRI center focused on computationally intensive approaches to analyze large-scale genomic data and identifying genetic contributions to human disease.
… The Center for Genomics and Data Science Research focuses on the development and application of … genetics and computer science to identify genetic variants responsible for increased susceptibility to disease and …
News Release
Researchers with support from NIH will conduct research into the genetic underpinnings of Alzheimer's disease.
… support from the National Institutes of Health to conduct research into the genetic underpinnings of Alzheimer's … medical centers that have been at the forefront of research in Alzheimer's genetics: University of Pennsylvania, … Institute on Aging (NIA) and the National Human Genome Research Institute (NHGRI), both part of NIH. The first phase …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
… 13, 2016, was to strengthen privacy protections law for research participants. The new law specifically requires … is collected from participants as part of federally-funded research. … To implement one of the law's privacy provisions, … who conduct sensitive, health-related human subjects research be issued Certificates of Confidentiality . …
Training, Diversity and Health Equity Office (TiDHE)
The Diversity Centers for Genome Research Consortium aims to support the development of innovative genomic research projects through infrastructure building and the formation of interdisciplinary research teams at Minority Serving Institutions (MSIs), institutions with a documented record and/or historical and current mission of recruiting, educating, training and graduating students from any of the populations identified as underrepresented in biomedical research.
… The Diversity Centers for Genome Research Consortium aims to support the development of … Consortium are to carry out innovative, state-of-the-art genomics research studies; enhance institutional genomics research capacity; foster genomics research career …