Search Results
Event
Identifying the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the NIH to address these ELSI issues.
… and identify ways for the NIH to address these ELSI issues. … Identifying the ELSI challenges raised by Citizen … and identify ways for the NIH to address these ELSI issues. … Event …
News Release
Researchers from NHGRI and the Undiagnosed Diseases Program (UDP) have discovered a new neurological condition characterized by issues with motor coordination and speech.
… discovered a new neurological condition characterized by issues with motor coordination and speech. They report their … and an unrelated child. The three children all had issues with motor coordination and speech, and one child had … dogs had abnormal behavior, atrophy of the cerebellum, issues with motor coordination and eye movement and ATG4D …
News Release
NIH issues a notice seeking public comment on a proposed update to the data management of genomic summary results under the NIH Genomic Data Sharing Policy.
… to update data management of genomic summary results … NIH issues a notice seeking public comment on a proposed update … privacy and research participants, science policy … NIH issues a notice seeking public comment on a proposed update …
The Genomics Landscape
In the March 2024 issue of The Genomics Landscape, NHGRI Director Eric Green spotlights the Centers of Excellence in Genomic Science (CEGS) Program evaluation.
Research Funding
The following are research areas of interest that have been identified by the participating NIH institutes and centers (ICs). Program Officer contact information is also included.
… may investigate the ethical, legal, social and policy issues that arise in connection with the design and conduct … developmental, and/or physical disabilities, and the societal implications of developing genomic therapies that aim to treat or “cure” disabilities. The societal impact of the development or use of …
News Release
NIH submits new policy that requires all NIH-funded investigators who conduct sensitive, health-related research be issued Certificates of Confidentiality.
The Genomics Landscape
In the April 2021 issue of the Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D. talks about the NIH UNITE program's goal to end structural racism in biomedical research.
… begun to identify actions to address structural racism and issues related to the lack of diversity, equity, and … information and perspectives about the many interrelated issues being examined by the NIH UNITE Initiative. Examples … in science , which served to elevate awareness of these issues. On May 25, as part of “ Bold Predictions for Human …
Staff
Dr. Nicole Lockhart is a program director in NHGRI's Division of Genomics and Society.
… While at NCI, she focused on ethical, legal and policy issues related to biobanking. Her academic training is in … and Society. … Nicole Lockhart, genomic healthcare, policy issues in genomics, ethical legal and social implications … …
News Release
The NHGRI-ASHG Genetics and Public Policy Fellowship prepares scientists for careers in science policy.
… … NHGRI-ASHG Genetics and Public Policy Fellowship, policy issues in genomics, Cristina Kapustij … The NHGRI-ASHG …
Health
The Family Health History Group connects stakeholders, researchers, and thought leaders to share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of family health history information.
… share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of … share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of … share learning, understand barriers in depth, and discuss issues and potential solutions related to the collection of …