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Policy Issues
Clinical research may yield new health-related information about volunteers who have chosen to participate in the studies.
… and incidental findings (IFs) from genomic research. These issues are not new or unique to genomics, but advances in … the Presidential Commission for the Study of Bioethical Issues released a report titled "Anticipate and Communicate: … who have chosen to participate in the studies. … Policy Issues …
Policy Issues
The Genome Statute and Legislation Database is comprised of state statutes and bills introduced during U.S. state legislative sessions.
… during U.S. state legislative sessions. … Policy Issues …
Policy Issues
Genetic information is used by law enforcement to investigate criminal acts and exonerate those who have been convicted of crimes they did not commit.
… been convicted of crimes they did not commit. … Policy Issues …
Policy Issues
Genome editing is a method that lets scientists change the DNA of many organisms, including plants, bacteria, and animals.
… held a conference to talk about these and similar ethical issues at the International Summit on Human Gene Editing . … … including plants, bacteria, and animals. … Policy Issues …
The Genomics Landscape
In the September 2021 issue of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., details how social media provides NHGRI staff with a space to talk about their work, make genomics topics easy to understand, and show how genomics can positively affect people.
Policy Issues
Participating in genomics research is an opportunity to support exploration of the genome and help scientists understand, prevent, detect and treat disease.
… FAQs about Clinical Studies Legal, Ethical, and Safety Issues … Frequently Asked Questions … Get Involved … … understand, prevent, detect and treat disease. … Policy Issues …
Policy Issues
Most genetic tests today are not regulated, meaning that they go to market without any independent analysis to verify the claims of the seller.
… analysis to verify the claims of the seller. … Policy Issues …
Policy Issues
Revisions to the Common Rule modernize, simplify, and enhance oversight for human subjects research in the United States.
… given that local IRBs will have more insight into ethical issues that require consideration (.114). Enforced compliance … for human subjects research in the United States. … Policy Issues …
Policy Issues
The GINA is an important U.S. civil rights law that protects individuals from discrimination based on their genetic information.
… for their leadership on genetic nondiscrimination issues, but they were assisted by other members of Congress … based on their genetic information. … Policy Issues …
Policy Issues
NHGRI has created the IDE Greenhouse as an educational resource to help increase understanding of the regulation in the genomics context.
… of the regulation in the genomics context. … Policy Issues …