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Policy Issues
En una decisión histórica en junio de 2013, el Tribunal Supremo determinó que el ADN en su forma natural no puede ser patentado.
… ADN en su forma natural no puede ser patentado. … Policy Issues …
Policies and Guidance
For FY21, NHGRI’s extramural program will be operating under the NHGRI 2020 Strategic Vision.
… of the genomics workforce; and ethical, legal, and social issues related to genomic advances. … The NHGRI Extramural … below. Competing Applications: Applications that address issues relevant to the strategic vision will be given the … Programs Competing Applications: Applications that address issues relevant to the strategic plan will be given the …
News Release
The American Society of Human Genetics and NHGRI have teamed up to sponsor the new Genetics and Education Fellowship.
… their health care and evaluate the relevant public policy issues,according to the National Human Genome Research … conduct projects and analyses on ethical, legal and policy issues. From January 2015 to September 2015, the fellow will … of genomics research into medical settings and the societal implications of this shift. "By learning to work …
Research Funding
Fosters basic and applied research on the ethical, legal and social implications of genetic and genomic research.
… or particularly persistent, ethical, legal, and social issues related to advances in genetics and genomics. … … Of particular interest are studies that explore these issues with and within communities that have been … in High Priority Research in Bioethical, Legal, and Societal Implications of Biomedical Research NOT-LM-17-001 …
Fact Sheet
Eugenics is the scientifically erroneous and immoral theory of “racial improvement” and “planned breeding,”
… Institute, or NHGRI) founded the Ethical, Legal and Societal Implications (ELSI) Research Program . For more than … information in the prenatal setting would lead to new societal pressures to terminate pregnancies where the fetus …
The Genomics Landscape
In the December 8, 2022 edition of The Genomics Landscape, NHGRI Director, Eric Green, M.D., Ph.D., looks back on the success of the Genome: Unlocking Life's Code exhibition as it came to a close in November.
… Eric Green pointed to the importance of tackling the societal implications of bringing genomics into health care. … difficult. They’re sociological, because of the societal challenges associated with health care.” … feature academic and scholarly perspectives about several issues related to social and behavioral genomics, including …
NEWS RELEASE
Cristina Kapustij, M.S., was named chief of the NHGRI's Policy and Program Analysis Branch.
… to the institute during a time when high profile policy issues related to the application of genomics to health and … to the dissemination of this knowledge through myriad societal applications. Ms. Kapustij and her team will assess … options to promote the use of genomic information for societal benefit." Ms. Kapustij completed her master's degree …
Fact Sheet
Genomic data science is a field of study that enables researchers to use powerful computational and statistical methods to decode the functional information hidden in DNA sequences.
… as each person's sequence data are associated with issues related to privacy and identity. … Infographic: How … data" field. … What are some of the ethical, legal and societal implications of genomic data sharing? Performing … criminals who left behind DNA at a crime scene. But the societal benefits must outweigh the potential risks of using …
Staff
Cristina Kapustij is the chief of the Policy and Program Analysis Branch at the National Human Genome Research Institute.
… needs for the field, and develop policy positions on issues arising from the translation of genomic research … genomics research and develops policies to address these issues. Ms. Kapustij’s well rounded work experiences have … with the Food and Drug Administration; and researched the societal implications of the DNA sequencing of newborn blood …
About NHGRI
A timeline of notable events in the history of the National Human Genome Research Institute.
… on race, nationalities, homosexuality, gender and other societal topics. Dr. Watson’s opinions on these topics are … on laws and policies related to a wide array of genetic issues July 26, 2004: National Human Genome Research … 2014. August 27, 2014: The National Institutes of Health issues a final NIH Genomic Data Sharing (GDS) policy to …